Evidence map›Paper›PMID 29654052›Full record

ArticleBMJ open2018

'Re-engage' pilot study protocol: a nurse-led eHealth intervention to re-engage, educate and empower childhood cancer survivors.

Christina Signorelli, Claire E Wakefield, Karen A Johnston, Joanna E Fardell, Mary-Ellen E Brierley, Elysia Thornton-Benko, Tali Foreman, Kate Webber, W Hamish Wallace, Richard J Cohn

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
4.4field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 16 citations in OpenAlex.

  1. Article
  2. Engaging Latino Adolescent and Young Adult (AYA) Cancer Survivors in Their Care: Piloting a Photonovela Intervention.Journal of cancer education : the official journal of the American Association for Cancer Education · 2021
    Article
  3. Review
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 3 institutions in 2 countries.

Christina SignorelliKids Cancer Centre, Sydney Children's Hospital, Randwick, New South Wales, Australia.ORCID 0000-0002-7091-0347
Claire E WakefieldKids Cancer Centre, Sydney Children's Hospital, Randwick, New South Wales, Australia.
Karen A JohnstonKids Cancer Centre, Sydney Children's Hospital, Randwick, New South Wales, Australia.
Joanna E FardellKids Cancer Centre, Sydney Children's Hospital, Randwick, New South Wales, Australia.
Mary-Ellen E BrierleyKids Cancer Centre, Sydney Children's Hospital, Randwick, New South Wales, Australia.
Elysia Thornton-BenkoBondi Road Doctors, Sydney, New South Wales, Australia.
Tali ForemanKids Cancer Centre, Sydney Children's Hospital, Randwick, New South Wales, Australia.
Kate WebberDepartment of Medical Oncology, Prince of Wales Hospital, Randwick, New South Wales, Australia.
W Hamish WallaceDepartment of Hematology/Oncology, Royal Hospital for Sick Children, Edinburgh, UK.
Richard J CohnKids Cancer Centre, Sydney Children's Hospital, Randwick, New South Wales, Australia.
UNSW Sydney · AUBond University · AURoyal Hospital for Children · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionMany childhood cancer survivors are disengaged from cancer-related follow-up care despite being at high risk of treatment-related late effects. Innovative models of long-term follow-up (LTFU) care to manage ongoing treatment-related complications are needed. 'Re-engage' is a nurse-led eHealth intervention designed to improve survivors' health-related self-efficacy, targeted at survivors disengaged from follow-up. Re-engage aims to overcome survivor- and parent-reported barriers to care and ensure survivors receive the care most appropriate to their risk level. METHODS AND ANALYSIS: This study will recruit 30 Australian childhood cancer survivors who are not receiving any cancer-related care. Participation involves two online/telephone consultations with a survivorship nurse for medical assessment, a case review, risk stratification and creation of a care plan by a multidisciplinary team of specialists. We will assess the feasibility of implementing 'Re-engage' and its acceptability to participants and health professionals involved. The primary outcome will be survivors' health-related self-efficacy, measured at baseline and 1 and 6 months postintervention. Secondary outcomes will include the effect of 'Re-engage' on survivors' health behaviours and beliefs, engagement in healthcare, information needs and emotional well-being. We will also document the cost per patient to deliver 'Re-engage'. If Re-engage is acceptable, feasible and demonstrates early efficacy, it may have the potential to empower survivors in coordinating their complex care, improving survivors' long-term engagement and satisfaction with care. Ideally, it will be implemented into clinical practice to recall survivors lost to follow-up and reduce the ongoing burden of treatment for childhood cancer. ETHICS AND DISSEMINATION: The study protocol has been approved by the South Eastern Sydney Local Health District Human Research Ethics Committee (reference number: 16/366). The results will be disseminated in peer-reviewed journals and at scientific conferences. A lay summary will be published on the Behavioural Sciences Unit website. TRIAL REGISTRATION NUMBER: ACTRN12618000194268.

Indexed as

Patient ParticipationSelf EfficacyTelemedicineAdolescentAdultAftercareAustraliaCancer SurvivorsChildClinical ProtocolsContinuity of Patient CareHumansNeoplasmsPatient Education as TopicPilot ProjectsQuality of LifeeHealthlong-term follow-upmodels of carepaediatric oncologysurvivorship

Identifiers

PMID29654052
PMCPMC5898358
OpenAlexW2803335179

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.