Evidence map›Paper›PMID 29654028›Full record

ArticleBMJ open2018

Digital Support Platform: a qualitative research study investigating the feasibility of an internet-based, postdiagnostic support platform for families living with dementia.

Lewis O J Killin, Tom C Russ, Sushee Kaur Surdhar, Youngseo Yoon, Brian McKinstry, Grant Gibson, Donald J MacIntyre

Abstract read
In one paragraph

Article in BMJ open, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 4 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed, 4 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 4 syntheses or guidelines pooled it.

  1. Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Lewis O J KillinCentre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK.
Tom C RussCentre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK.
Sushee Kaur Surdhar
Youngseo YoonCollege of Medicine and Veterinary Medicine, University of Edinburgh, Edinburgh, UK.
Brian McKinstryUsher Institute for Population and Health Sciences, University of Edinburgh, Edinburgh, UK.
Grant GibsonFaculty of Social Science, University of Stirling, Stirling, UK.
Donald J MacIntyreCentre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK.

Funding

Chief Scientist Office ARPG/07/03Chief Scientist Office CZG/2/527Medical Research Council MR/K026992/1
6 · The paper itself

Abstract

objectivesTo establish the feasibility of the Digital Support Platform (DSP), an internet-based, postdiagnostic tool designed for families living with a diagnosis of dementia.

designQualitative methods using normalisation process theory as an analysis framework for semistructured interview transcriptions.

settingA community care setting in the South-East Scotland.

participantsWe interviewed 10 dyads of people with Alzheimer's, vascular or mixed dementia (PWD), and their family carers, who had been given and had used the DSP for at least 2 months.

resultsOur analysis revealed that the DSP was predominantly understood and used by the carers rather than PWD, and was used alongside tools and methods they already used to care for their relative. The DSP was interpreted as a tool that may be of benefit to those experiencing later stages of dementia or with physical care needs. Carers stated that the DSP may be of benefit in the future, reflecting a disinclination to prepare for or anticipate for future needs, rather than focus on those needs present at the time of distribution. PWD spoke positively about an interest in learning to use technology more effectively and enjoyed having their own tablet devices.

conclusionsThe DSP was not wholly appropriate for families living with dementia in its early stages. The views of carers confirmed that postdiagnostic support was valued, but emphasised the importance of tailoring this support to the exact needs and current arrangements of families. There may be a benefit to introducing, encouraging, providing and teaching internet-enabled technology to those PWD who do not currently have access. Training should be provided when introducing new technology to PWD.

Indexed as

InternetPsychosocial Support SystemsAgedAged, 80 and overCaregiversCommunity Health ServicesDementiaFeasibility StudiesFemaleHumansMaleQualitative ResearchScotlandSocial Supportdementiahealth informaticsinternet interventionpostdiagnosticqualitative research

Identifiers

PMID29654028
PMCPMC5898353

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.