ArticleBMJ open2018
Cancer-related information needs and treatment decision-making experiences of people with dementia in England: a multiple perspective qualitative study.
Article in BMJ open, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 4 of them syntheses that pooled it.
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Who cites it
25 citing papers in PubMed, 4 syntheses or guidelines pooled it, 56 citations in OpenAlex.
- Factors affecting the decision to investigate older adults with potential cancer symptoms: a systematic review.The British journal of general practice : the journal of the Royal College of General Practitioners · 2022Pooled it
- Pooled it
- Understanding the training and education needs of homecare workers supporting people with dementia and cancer: A systematic review of reviews.Dementia (London, England) · 2020Pooled it
- How are caregivers involved in treatment decision making for older people with dementia and a new diagnosis of cancer?Psycho-oncology · 2019Pooled it
- Nursing Competency Scale for Patients With Comorbid Cancer and Dementia in Acute Care Hospitals (NCS-CD): Development and Validation.Japan journal of nursing science : JJNS · 2026Article
- Nurse Practitioners' Experiences Navigating Treatment Decision-Making Affecting Older People with Neurocognitive Disorders and Cancer.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2026Article
- Treatment patterns of symptomatic treatments for Alzheimer's disease and related dementias.BMC geriatrics · 2025Article
- An account of personal autonomy for people living with dementia.The Gerontologist · 2025Article
- The Provision of Social Support in an Online Support Forum for Caregivers of People With Comorbid Dementia and Cancer: Content Analysis Study.JMIR cancer · 2025Article
- Clinical decision-making and care pathways for people with multiple long-term conditions admitted to hospital: a scoping review.BMJ open · 2025Article
- Comorbid Dementia and Cancer Therapy Decision-Making: A Scoping Review.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2024Article
- Experiences of hospital care for people with multiple long-term conditions: a scoping review of qualitative research.BMC medicine · 2024Article
- Review
- The Role of Nurse on the Treatment Decision Support for Older People with Cancer: A Systematic Review.Healthcare (Basel, Switzerland) · 2023Review
- Article
- Cancer management among older adults living with dementia: A call to action from Asian perspectives.Asia-Pacific journal of oncology nursing · 2022Article
- Trends of hospitalizations among patients with both cancer and dementia diagnoses in New York 2007-2017.Healthcare (Amsterdam, Netherlands) · 2021Article
- Cultural and Ethical Barriers to Cancer Treatment in Nursing Homes and Educational Strategies: A Scoping Review.Cancers · 2021Article
- The Impact of Dementia on Cancer Treatment Decision-Making, Cancer Treatment, and Mortality: A Mixed Studies Review.JNCI cancer spectrum · 2021Review
- Navigating cancer treatment and care when living with comorbid dementia: an ethnographic study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
Corrections and comments
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Authors and funding
8 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesLittle is known about the cancer experience and support needs of people with dementia. In particular, no evidence currently exists to demonstrate the likely complex decision-making processes for this patient group and the oncology healthcare professionals (HCP) involved in their care. The aim of this study was to explore the cancer-related information needs and decision-making experiences of patients with cancer and comorbid dementia, their informal caregivers and oncology HCPs.
designCross-sectional qualitative study. Semistructured interviews were conducted face to face with participants. Interviews were audio recorded and transcribed prior to thematic analysis.
settingPatients with a diagnosis of cancer and dementia, their informal caregivers and oncology HCPs involved in their care, all recruited from a regional treatment cancer centre.
participantsPurposeful sample of 10 patients with a diagnosis of cancer-dementia, informal caregivers (n=9) and oncology HCPs (n=12).
resultsFour themes were identified: (1) leading to the initial consultation-HCPs require more detailed information on the functional impact of dementia and how it may influence cancer treatment options prior to meeting the patient; (2) communicating clinically relevant information-informal caregivers are relied on to provide patient information, advocate for the patient and support decision-making; (3) adjustments to cancer care-patients with dementia get through treatment with the help of their family and (4) following completion of cancer treatment-there are continuing information needs. Oncology HCPs discussed their need to consult specialists in dementia care to support treatment decision-making.
conclusionsAlthough patients with cancer-dementia are involved in their treatment decision-making, informal caregivers are generally crucial in supporting this process. Individual patient needs and circumstances related to their cancer must be considered in the context of dementia prognosis highlighting complexities of decision-making in this population. Oncology teams should strive to involve healthcare staff with dementia expertise as early as possible in the cancer pathway.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.