ReviewCanadian family physician Medecin de famille canadien2018
Supporting adults with intellectual and developmental disabilities to participate in health care decision making.
Review in Canadian family physician Medecin de famille canadien, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
9 citing papers in PubMed, 56 citations in OpenAlex.
- Taunakitanga Takitini, Reframing Self-Management Support for All in Aotearoa New Zealand: Protocol for a Participatory Case Study Program of Research.JMIR research protocols · 2026Article
- Clinical Diagnostics After Failed Hearing Screening in People With Intellectual Disabilities Do Not Often Take Place.Journal of intellectual disability research : JIDR · 2026Article
- Individualized participatory care planning for individuals with intellectual and developmental disabilities: a qualitative descriptive study.BMC health services research · 2024Article
- Perspectives on the essential skills of healthcare decision making in children and adolescents with intellectual disability.International journal for equity in health · 2024Review
- Cervical screening participation and access facilitators and barriers for people with intellectual disability: a systematic review and meta-analysis.Frontiers in psychiatry · 2024Review
- Role of primary care for individuals with childhood-onset neurologic conditions.Health care transitions · 2024Article
- Ethical and Practical Challenges of the Communication and Behavioral Manifestations of Primary Progressive Aphasia.Seminars in speech and language · 2020Article
- Article
- Promoting health care decision-making capabilities of adults with intellectual and developmental disabilities.Canadian family physician Medecin de famille canadien · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo discuss what is new in the revised guideline 3 of the "Primary care of adults with intellectual and developmental disabilities [IDD]. 2018 Canadian consensus guidelines" on decision-making capacity, and how to implement the recommendations. QUALITY OF EVIDENCE: Integrative review based on a literature search, the framework of the United Nations Convention on the Rights of Persons with Disabilities, and the experience of the authors. MAIN MESSAGE: Person-centred health care of adults with IDD should include all possible contributions from the patient in decision making. At present, legal criteria do not address the relational aspects of decision making that are important for adults with IDD. The revised guideline 3 incorporates recent thinking regarding supported and shared decision making. It envisages decision making as a collaborative exercise in which the patient, trusted caregivers, and the family physician all are involved in deciding on medically appropriate interventions that promote the patient's goals or values.
conclusionFamily physicians and caregivers both play an important role in supporting adults with IDD so that they can participate in health care decision making. Communication, mediation, and advocacy skills, plus the use of tools adapted for adults with IDD, can facilitate the family physician's role.
Indexed as
Identifiers
29650742PMC5906782W2797883466What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.