Evidence map›Paper›PMID 29650741›Full record

ReviewCanadian family physician Medecin de famille canadien2018

HELP for behaviours that challenge in adults with intellectual and developmental disabilities.

Laurie Green, Karen McNeil, Marika Korossy, Kerry Boyd, Elizabeth Grier, MacKenzie Ketchell, Alvin Loh, Yona Lunsky, Shirley McMillan, Amanda Sawyer and 2 more

Abstract readCase ReportsReview
In one paragraph

Review in Canadian family physician Medecin de famille canadien, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
1.6field-weighted citation impact, top 16% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 17 citations in OpenAlex.

  1. Describing the communication of autistic people during experiences of distress: A scoping review.Autism : the international journal of research and practice · 2026
    Article
  2. Article
  3. Article
  4. Article
  5. Article
  6. Adults with intellectual disabilities and mental health disorders in primary care: a scoping review.The British journal of general practice : the journal of the Royal College of General Practitioners · 2022
    Article
  7. Article
  8. Psychiatric and Medical Profiles of Autistic Adults in the SPARK Cohort.Journal of autism and developmental disorders · 2020
    Article
  9. Article
  10. Canadian family physician Medecin de famille canadien · 2018
    Article
  11. A greater understanding.Canadian family physician Medecin de famille canadien · 2018
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 8 institutions in 2 countries.

Laurie GreenFamily physician practising at St Michael's Hospital in Toronto, Ont, and Lecturer at the University of Toronto. greenl@smh.ca.
Karen McNeilFamily physician at Dalhousie Family Medicine in Halifax, NS, and Assistant Professor in the Department of Family Medicine at Dalhousie University.
Marika KorossyRetired librarian from Surrey Place Centre in Toronto.
Kerry BoydPsychiatrist and Associate Clinical Professor in the Department of Psychiatry and Behavioural Neurosciences at McMaster University in Hamilton, Ont, and Chief Clinical Officer for Bethesda Community Service in Thorold, Ont.
Elizabeth GrierFamily physician, Senior Advisor for Developmental Disabilities, and Assistant Professor in the Department of Family Medicine at Queen's University in Kingston, Ont.
MacKenzie KetchellBehaviour analyst and Professor in the School of Social and Community Services at Humber Institute of Technology and Advanced Learning in Toronto.
Alvin LohDevelopmental pediatrician and Medical Chief of Staff at Surrey Place Centre in Toronto and Assistant Professor in the Department of Pediatrics at the University of Toronto.
Yona LunskyThe H-CARDD Director and Clinical Scientist at the Centre for Addiction and Mental Health in Toronto and Professor and Developmental Disability Lead at the University of Toronto.
Shirley McMillanAn advanced practice nurse at Surrey Place Centre and Adjunct Faculty in the Faculty of Nursing at the University of Toronto.
Amanda SawyerPsychiatry resident and researcher and currently works in the Dual Diagnosis Research Program at the Centre for Addiction and Mental Health.
Anupam ThakurPsychiatrist in Adult Neurodevelopmental Services at the Centre for Addiction and Mental Health and Surrey Place Centre, and Assistant Professor in the Department of Psychiatry at the University of Toronto.
Elspeth BradleyPsychiatrist in intellectual disabilities and Associate Professor in the Department of Psychiatry at the University of Toronto.
Centre for Addiction and Mental Health · CASurrey Place Centre · CAAssociation of University Centers on Disabilities · USDalhousie University · CAHumber Polytechnic · CAMcMaster University · CAQueen's University · CASt. Michael's Hospital · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo provide primary care physicians with an understanding of the causes of behaviours that challenge (BTC) in adults with intellectual and developmental disabilities (IDD), as presented in the 2018 Canadian consensus guidelines for primary care of adults with IDD; to offer a systematic approach to the assessment and treatment of such behaviours; and to link to tools to support these assessments. SOURCES OF INFORMATION: This review elaborates upon guidelines 26 to 29 in the mental health section of the 2018 Canadian consensus guidelines. Several of the authors participated in the development of these guidelines, which were based on literature searches and interdisciplinary input. MAIN MESSAGE: Most adults with IDD are followed by primary care providers but they comprise a small proportion of primary care practices. Unique ways of communicating needs, diagnostic queries, and BTC are common in this population. This complexity can lead to missed diagnoses and inappropriate antipsychotic medication use with attendant risks. This article presents a systematic approach, HELP, to the assessment and treatment of factors of Health, Environment, Lived experience, and Psychiatric conditions that can lead to BTC and includes tools to support these assessments.

conclusionA structured approach to the assessment and treatment of BTC in adults with IDD helps family physicians provide guideline-directed, individualized care to this population. This includes a systematic evaluation using the HELP framework that takes place over multiple visits. A team of health professionals might be needed for optimal care, but these resources are not routinely available across Canada.

Indexed as

Physician-Patient RelationsAdultAggressionCanadaCommunicationDevelopmental DisabilitiesFemaleFragile X SyndromeHumansIntellectual DisabilityPhysical ExaminationPractice Guidelines as TopicPrimary Health CareRisk AssessmentYoung Adult

Identifiers

PMID29650741
PMCPMC5906788
OpenAlexW2797592849

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.