Evidence map›Paper›PMID 29650602›Full record

GuidelineCanadian family physician Medecin de famille canadien2018

Primary care of adults with intellectual and developmental disabilities: 2018 Canadian consensus guidelines.

William F Sullivan, Heidi Diepstra, John Heng, Shara Ally, Elspeth Bradley, Ian Casson, Brian Hennen, Maureen Kelly, Marika Korossy, Karen McNeil and 17 more

Abstract readPractice Guideline
In one paragraph

Guideline in Canadian family physician Medecin de famille canadien, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 80 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
80citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

80 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
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  11. What Guides Organizations' Current Dementia-Related Practices Across Four Canadian Provinces?International journal of environmental research and public health · 2025
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  19. Healthy working in inclusive companies - a study protocol of the GAIN project.Journal of occupational medicine and toxicology (London, England) · 2023
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20 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

27 authors.

William F SullivanAssociate Professor in the Department of Family and Community Medicine at the University of Toronto in Ontario, a staff physician in Medical Services at Surrey Place Centre and the Family Practice Unit at St Michael's Hospital, and Director of the Developmental Disabilities Primary Care Program at Surrey Place Centre. bill.sullivan@utoronto.ca.
Heidi DiepstraResearch associate at Surrey Place Centre.
John HengAssistant Professor in the Department of Philosophy and the Department of Interdisciplinary Studies at King's University College in London, Ont.
Shara AllyAn advanced practice nurse at Surrey Place Centre, Adjunct Lecturer in the Lawrence S. Bloomberg Faculty of Nursing at the University of Toronto, and an MBA candidate.
Elspeth BradleyAssociate Professor in the Department of Psychiatry at the University of Toronto and a consulting psychiatrist and psychotherapist in intellectual disabilities.
Ian CassonAssociate Professor in the Department of Family Medicine at Queen's University in Kingston, Ont.
Brian HennenProfessor Emeritus at Western University in London and Dalhousie University in Halifax, NS.
Maureen KellyRetired nurse from Toronto.
Marika KorossyRetired librarian from Surrey Place Centre in Toronto.
Karen McNeilAssistant Professor in the Department of Family Medicine at Dalhousie University.
Dara AbellsFamily physician at Forest Hill Family Health Centre in Toronto and the Integrated Services for Autism and Neurodevelopmental Disorders, and Lecturer in the Department of Family and Community Medicine at the University of Toronto.
Khush AmariaClinical and health psychologist and team lead for the Good 2 Go Transition Program at the Hospital for Sick Children in Toronto.
Kerry BoydAssociate Clinical Professor in the Department of Psychiatry and Behavioural Neurosciences at McMaster University in Hamilton, Ont, and Chief Clinical Officer for Bethesda Community Services in Thorold, Ont.
Meg GemmillAssistant Professor in the Department of Family Medicine at Queen's University.
Elizabeth GrierAssistant Professor in the Department of Family Medicine at Queen's University.
Natalie Kennie-KaulbachUniversity Teaching Fellow and a coordinator in the Skills Lab in the College of Pharmacy at Dalhousie University.
Mackenzie KetchellBehaviour analyst and Professor in the School of Social and Community Services at Humber Institute of Technology and Advanced Learning in Toronto.
Jessica LadouceurAdjunct Professor in the Belleville Queen's University Family Medicine Centre.
Amanda LeppResident in the Discipline of Family Medicine at McMaster University.
Yona LunskySenior Scientist at the Centre for Addiction and Mental Health in Toronto and Professor and Developmental Disability Lead at the University of Toronto.
Shirley McMillanClinical nurse specialist in the adult program at Surrey Place Centre.
Ullanda NielFamily physician at the Scarborough Centre for Healthy Communities in Ontario.
Samantha SacksClinical Faculty Lecturer in the Department of Family Medicine at McGill University in Montreal, Que, and a family physician at See Things My Way Centre for Innovation in Autism and Intellectual Disabilities.
Sarah SheaProfessor in the Department of Pediatrics at Dalhousie University.
Katherine StringerAssociate Professor and Chair of Family Medicine at Memorial University of Newfoundland in St John's.
Kyle SueClinical Assistant Professor in the Discipline of Family Medicine at Memorial University of Newfoundland.
Sandra WitherbeeFamily practice nurse in the Dalhousie Family Medicine Clinic.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo update the 2011 Canadian guidelines for primary care of adults with intellectual and developmental disabilities (IDD).

methodsFamily physicians and other health professionals experienced in the care of people with IDD reviewed and synthesized recent empirical, ecosystem, expert, and experiential knowledge. A system was developed to grade the strength of recommendations. RECOMMENDATIONS: Adults with IDD are a heterogeneous group of patients and have health conditions and factors affecting their health that can vary in kind, manifestation, severity, or complexity from those of others in the community. They require approaches to care and interventions that are adapted to their needs. These guidelines provide advice regarding standards of care. References to clinical tools and other practical resources are incorporated. The approaches to care that are outlined here can be applied to other groups of patients that have impairments in cognitive, communicative, or other adaptive functioning.

conclusionAs primary care providers, family physicians play a vital role in promoting the health and well-being of adults with IDD. These guidelines can aid their decision making with patients and caregivers.

Indexed as

Persons with DisabilitiesAdultCanadaConsensusDevelopmental DisabilitiesHumansIntellectual DisabilityPrimary Health CareStandard of Care

Identifiers

PMID29650602
PMCPMC5897068

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.