ArticleBMJ paediatrics open2018
Patient safety vulnerabilities for children with intellectual disability in hospital: a systematic review and narrative synthesis.
Article in BMJ paediatrics open, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed, 2 syntheses or guidelines pooled it, 48 citations in OpenAlex.
- Using consumer engagement strategies to improve healthcare safety for young people: An exploration of the relevance and suitability of current approaches.Health expectations : an international journal of public participation in health care and health policy · 2022Pooled it
- Do patient engagement interventions work for all patients? A systematic review and realist synthesis of interventions to enhance patient safety.Health expectations : an international journal of public participation in health care and health policy · 2021Pooled it
- Article
- Co-Producing Patient-Reported Experience Measures With People With Intellectual Disability to Improve Healthcare Quality and Outcomes: The 'Listen to Me' Project Protocol.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Perioperative pathways for children with neurodevelopmental conditions and behaviours that challenge: An evaluation of parent experiences for service improvement.Journal of perioperative practice · 2025Article
- Nurse managers on healthy environments for adolescents living with intellectual disabilities.Curationis · 2024Article
- Experiences of Inpatient Healthcare Services Among Children With Medical Complexity and Their Families: A Scoping Review.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Facilitating choice when engaging young people with disabilities: reflections from co-researcher training.Research involvement and engagement · 2024Article
- The development and evaluation of a vaccination pathway for children with intellectual and developmental disability and needle fear.Paediatric & neonatal pain · 2024Article
- Seeking Care for Children with Intellectual and/or Developmental Disabilities in the Emergency Department: A Mixed Methods Systematic Review of Parents' Experiences and Information Needs.Open access emergency medicine : OAEM · 2024Review
- The need for co-educators to drive a new model of inclusive, person-centred and respectful co-healthcare with people with intellectual disability.Frontiers in psychiatry · 2024Article
- Article
- Families' Experiences on Safety Needs of Children with Intellectual Disability.International journal of environmental research and public health · 2022Article
- Reported clinical incidents of children with intellectual disability: A qualitative analysis.Developmental medicine and child neurology · 2022Article
- 'Smiles and laughter and all those really great things': Nurses' perceptions of good experiences of care for inpatient children and young people with intellectual disability.Journal of advanced nursing · 2022Article
- Unscheduled healthcare for children with intellectual disabilities: A systematic scoping review.Journal of applied research in intellectual disabilities : JARID · 2022Article
- Inequities in quality and safety outcomes for hospitalized children with intellectual disability.Developmental medicine and child neurology · 2022Article
- Systemic safety inequities for people with learning disabilities: a qualitative integrative analysis of the experiences of English health and social care for people with learning disabilities, their families and carers.International journal for equity in health · 2022Article
- Codesigning patient experience measures for and with children and young people with intellectual disability: a study protocol.BMJ open · 2021Article
- What Are the Psycho-Social and Information Needs of Adolescents and Young Adults Cancer Care Consumers with Intellectual Disability? A Systematic Review of Evidence with Recommendations for Future Research and Practice.Children (Basel, Switzerland) · 2021Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeAdults and children with intellectual disability (ID) are vulnerable to preventable morbidity and mortality due to poor quality healthcare. While poor quality care has been commonly identified among children with ID, evidence of the patient safety outcomes for this group is lacking and therefore explored in this review. DATA SOURCES: Systematic searches of six electronic bibliographic research databases were undertaken from January 2000 to October 2017, in addition to hand searching. STUDY SELECTION: Keywords, subject headings and MeSH terms relating to the experience of iatrogenic harm during hospitalisation for children with ID were used. Potentially relevant articles were screened against the eligibility criteria. Non-English language papers were excluded. DATA EXTRACTION: Data regarding: author(s), publication year, country, sample, health service setting, study design, primary focus and main findings related to measures of quality and safety performance were extracted. RESULTS OF DATA SYNTHESIS: Sixteen studies met the inclusion criteria, with three themes emerging: the impact of the assumptions of healthcare workers (HCWs) about the child with ID on care quality and associated safety outcomes; reliance on parental presence during hospitalisation as a protective factor; and the need for HCWs to possess comprehensive understanding of the IDs experienced by children in their care, to scientifically deduce how hospitalisation may compromise their safety, care quality and treatment outcomes.
conclusionWhen HCWs understand and are responsive to children's individual needs and their ID, they are better placed to adjust care delivery processes to improve care quality and safety during hospitalisation for children with ID.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.