ArticleBMJ paediatrics open2017
Fortune favours the brave: composite first-person narrative of adolescents with congenital heart disease.
Article in BMJ paediatrics open, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
5 citing papers in PubMed, 13 citations in OpenAlex.
- Exploring the lived experiences of early- and mid-career female academic GPs in the UK: a biographical narrative interview study.The British journal of general practice : the journal of the Royal College of General Practitioners · 2025Article
- 'When the bedbugs come, that's another problem': exploring the lived experiences of bedbug infestations among low-income older adults and service providers who support them.Perspectives in public health · 2024Article
- Interdisciplinarity and Patient Engagement: New Representations of Cardiovascular Anatomy.Reviews in cardiovascular medicine · 2022Article
- Enhancing the collective, protecting the personal: the valuable role of composite narratives in medical education research.Perspectives on medical education · 2022Article
- 'Medical humanities · 2019Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundAn interdisciplinary framework including a narrative element could allow addressing lack of awareness or excessive anxieties and teasing out divergences between patients' health status and their expectations. This could be particularly relevant for adolescents with congenital heart disease (CHD).
objectiveTo develop a collective narrative ensuing from a creative activity involving adolescents with CHD, in order to explore their health perceptions and expectations.
designArtist-led workshop process supported by a multidisciplinary team. SETTING AND
participantsYoung people with CHD (n=5, age 17-18 years, two men) were involved in the creative process, which encouraged them, over two sessions, to elaborate imagery relating to their uniqueness as individuals and their hearts. On top of creative activities (including self-portraits, embossing, body mapping and creative writing), participants were also shown their hearts in the form of cardiovascular MRIs and three-dimensional (3D) models manufactured by means of 3D printing.
methodsA composite first-person narrative approach was adopted to handle the emerged phenomenological descriptions and creative outputs, in order to shape a unified story.
resultsThe composite first-person narrative highlighted themes central to the patients, including their interpretation of medical references, their resilience and their awareness of anatomical complexity. DISCUSSION AND
conclusionsExploring the narrative of adolescents with CHD can offer unique insight into the way they view their hearts at a crucial stage of their care. An artist-led creative workshop supported by a multidisciplinary team can be a valuable approach to collect such narratives from patients and begin exploring them.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.