Evidence map›Paper›PMID 29633852›Full record

ArticleAutism : the international journal of research and practice2019

Implementing systems-based innovations to improve access to early screening, diagnosis, and treatment services for children with autism spectrum disorder: An Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services network study.

Sarabeth Broder Fingert, Alice Carter, Karen Pierce, Wendy L Stone, Amy Wetherby, Chris Scheldrick, Christopher Smith, Elizabeth Bacon, Stephen N James, Lisa Ibañez and 1 more

Abstract read
In one paragraph

Article in Autism : the international journal of research and practice, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Building Capacity: A Systematic Review of Training in the Diagnosis of Autism for Community-Based Clinicians.Autism research : official journal of the International Society for Autism Research · 2025
    Pooled it
  2. Trial
  3. Article
  4. Article
  5. Article
  6. Review
  7. The Influence of Policy on Early Diagnosis and Other Autism Services: A Narrative Review.Review journal of autism and developmental disorders · 2025
    Article
  8. Article
  9. Feasibility of the Autism NavigatorAutism : the international journal of research and practice · 2024
    Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Multi-method process maps: An interdisciplinary approach to investigateJournal of clinical and translational science · 2020
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Sarabeth Broder Fingert1 Boston University School of Medicine, USA.
Alice Carter2 University of Massachusetts Boston, USA.
Karen Pierce3 University of California - San Diego, USA.
Wendy L Stone4 University of Washington, USA.
Amy Wetherby5 Florida State University College of Medicine, USA.
Chris Scheldrick6 Boston University School of Public Health, USA.
Christopher Smith7 Southwest Autism Research & Resource Center, USA.
Elizabeth Bacon3 University of California - San Diego, USA.
Stephen N James7 Southwest Autism Research & Resource Center, USA.
Lisa Ibañez4 University of Washington, USA.
Emily Feinberg8 Boston University School of Public Health, Boston, USA.

Funding

The ontogeny of social vocal engagement and its derailment in autismP50MH100029 · NIMH · EMORY UNIVERSITY · PI WETHERBY, AMY M · 2012 to 2021
$20.1M
Mobilizing Community Systems to Engage Families in Early ASD Detection & ServicesR01MH104423 · NIMH · FLORIDA STATE UNIVERSITY · PI KLIN, AMI, LORD, CATHERINE · 2014 to 2018
$10.4M
Intellectual and Developmental Disabilities Research CenterU54HD083091 · NICHD · UNIVERSITY OF WASHINGTON · PI DOHERTY, DANIEL · 2014 to 2019
$7.9M
Early Identification and Service Linkage for Urban Children with Autism: Option 2 Testing Broadband Screening Instruments in Young ChildrenR01MH104355 · NIMH · BOSTON UNIVERSITY MEDICAL CAMPUS · PI FEINBERG, EMILY · 2014 to 2018
$6.0M
Detection of ASD at the 1st birthday as standard of care: The Get SET Early ModelR01MH104446 · NIMH · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI PIERCE, KAREN L · 2014 to 2018
$6.0M
Building a theoretic framework and measures clearinghouse to assess risks and benefits of ASD screening for young children with autismR01MH104400 · NIMH · UNIVERSITY OF MASSACHUSETTS BOSTON · PI CARTER, ALICE S., SHELDRICK, RADLEY C. · 2014 to 2018
$4.3M
A Screen-Refer-Treat (SRT) Model to Promote Earlier Access to ASD InterventionR01MH104302 · NIMH · UNIVERSITY OF WASHINGTON · PI STONE, WENDY L. · 2014 to 2018
$4.3M
Improving and Streamlining Screening and Diagnosis of ASD at 18-24 Months of AgeR01HD065272 · NICHD · FLORIDA STATE UNIVERSITY · PI WETHERBY, AMY M · 2009 to 2010
$1.9M
Evaluating Implementation of a Patient Navigator Intervention to Improve Access to Diagnostic and Treatment Services for Children with Autism Spectrum DisorderK23MH109673 · NIMH · UNIV OF MASSACHUSETTS MED SCH WORCESTER · PI BRODER-FINGERT, SARABETH · 2016 to 2020
$856k
NICHD NIH HHS R01 HD065272NICHD NIH HHS U54 HD083091NIMH NIH HHS K23 MH109673NIMH NIH HHS P50 MH100029NIMH NIH HHS R01 MH104302NIMH NIH HHS R01 MH104355NIMH NIH HHS R01 MH104400NIMH NIH HHS R01 MH104423NIMH NIH HHS R01 MH104446
6 · The paper itself

Abstract

In 2013, the National Institute of Mental Health funded five trials of unique, multicomponent, systems-based innovations designed to improve access to early screening, diagnosis, and treatment of autism spectrum disorder-collectively known as the Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services Network. As part of an ongoing effort to pool data and learn from shared experience, we collected information across all studies about innovation components and implementation strategies. First, each study group completed standardized checklists based on the Template for Intervention Description and Replication and the Expert Recommendation for Implementing Change. Then, we interviewed principal and co-investigators of each study (n = 9) to further explore innovation components and assess barriers and facilitators to implementation. Innovation strategies were diverse (five different autism spectrum disorder screeners were used, 40% included early intervention trainings, 60% involved new technology). Common implementation strategies included developing stakeholder relationships and provider trainings. Barriers included inefficient systems of care, difficulty engaging families in the innovations, provider attitudes, and organizational culture (e.g. difficulty changing clinic processes). These findings suggest that-despite diverse settings and a variety of innovation content-common facilitators and challenges exist in implementing innovations to enhance access to early autism spectrum disorder screening, diagnosis, and treatment.

Indexed as

Autism Spectrum DisorderChild, PreschoolEarly DiagnosisFemaleHealth Services AccessibilityHumansInfantInterviews as TopicMaleMass ScreeningPediatricsProgram Evaluationautismearly interventionimplementation

Identifiers

PMID29633852
PMCPMC6167204

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.