ArticleCongenital heart disease2018
Financial burdens and mental health needs in families of children with congenital heart disease.
Article in Congenital heart disease, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06158373 (The Effect of Mother's Massage and Safe Swaddling on Bonding, Self-effıcacy and Vital Signs in Infants Undergoing Cardiovascular Surgery), which is not on this map. Cited by 44 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
The Effect of Mother's Massage and Safe Swaddling on Bonding, Self-effıcacy and Vital Signs in Infants Undergoing Cardiovascular Surgery
Who cites it
44 citing papers in PubMed, 1 synthesis or guideline pooled it, 73 citations in OpenAlex.
- Social Determinants of Disparities in Mortality Outcomes in Congenital Heart Disease: A Systematic Review and Meta-Analysis.Frontiers in cardiovascular medicine · 2022Pooled it
- Congenital Heart Defects, Special Needs, and Developmental Vulnerability in Singleton Children at School Age: A Population-Based Data Linkage Study.Journal of the American Heart Association · 2026Article
- The Prevalence of Adverse Childhood Experiences in the Congenital Heart Disease Population in Los Angeles County.Pediatric cardiology · 2026Article
- Update on Education for Families and Patients With Pediatric Heart Disease: A Focus on Technological Advancements, Procedures, and Transitions of Care: A Scientific Statement From the American Heart Association.Journal of the American Heart Association · 2026Review
- Review
- The Emotional and Psychological Impact on Families Raising Children With Special Needs: A Primary Care Perspective.Health science reports · 2026Article
- Association of Material Hardship and Clinical Outcomes in Infants with Congenital Heart Disease.Pediatric cardiology · 2026Article
- School Performance and Learning Challenges in Children and Adolescents with Congenital Heart Disease.Pediatric cardiology · 2026Review
- Article
- Effect of Chronic Pediatric Heart Conditions on Family Dynamics in Saudi Arabia: A Cross-Sectional Study.Cureus · 2025Article
- Dyadic Mental Health in Paediatric Congenital Heart Disease: Actor-Partner Associations Between Child HRQoL/Depression and Caregiver Stress Across Lesion Severity.Healthcare (Basel, Switzerland) · 2025Article
- A Mediation Analysis of Trauma Symptoms on the Well-Being in Caregivers of Children with Medical Complexity.Healthcare (Basel, Switzerland) · 2025Article
- Changes in maternal morbidity and infant outcomes following state-level abortion bans post-Dobbs: a comparative interrupted time series study.BMC public health · 2025Article
- Non-monetary burdens of out-of-pocket costs incurred by patients and caregivers for medical care: a scoping review.BMJ open · 2025Article
- Loss and Grief in Parents of Children Hospitalized for Congenital Heart Disease.Hospital pediatrics · 2025Article
- Understanding the barriers and facilitators that impact physical activity levels in children and adolescents with Congenital Heart Disease (CHD): a rapid review.BMC public health · 2025Review
- Family caregiver frailty in adult congenital heart disease is overlooked: A call to action.International journal of cardiology. Congenital heart disease · 2025Article
- Parental Burnout-A Model of Risk Factors and Protective Resources Among Mothers of Children with/Without Special Needs.European journal of investigation in health, psychology and education · 2024Article
- Quality of life in pediatric patients on a paracorporeal ventricular assist device with a novel mobile driving system.JHLT open · 2024Article
- Hospitalization- and death-related financial and employment effects in parents of children with life-limiting conditions: a fixed-effects analysis.European journal of pediatrics · 2024Article
Corrections and comments
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Authors and funding
3 authors at 2 institutions in 1 country.
Funding
Abstract
objectiveTo examine the financial burdens and mental health needs of families of children with special healthcare needs (CSHCN) with congenital heart disease (CHD).
methodsData from the 2009-2010 National Survey of Children with Special Health Care Needs (NS-CSHCN) were used to examine parent-reported financial burdens (out-of-pocket expenses, financial problems, employment impact, caregiving hours) and family members' need for mental health services in families of CSHCN with CHD. Multivariable logistic regression was used to compare financial burdens and family members' need for mental health services among CSHCN with and without CHD. Among CSHCN with CHD, multivariable logistic regression, stratified by age (0-5 and 6-17 years), was used to assess characteristics associated with the outcomes.
resultsOverall, families of 89.1% of CSHCN with CHD experienced at least one financial burden and 14.9% needed mental health services due to the child's condition. Compared with CSHCN without CHD, those with CHD had families with a higher prevalence of all financial burdens (adjusted prevalence ratio [aPR] range: 1.4-1.8) and similar family member need for mental health services (aPR = 1.3, 95% CI [1.0, 1.6]). Across both age groups, insurance type, activity limitations, and comorbidities were significantly associated with financial burdens and/or family members' need for mental health services.
conclusionsCSHCN with CHD, compared with those without CHD, lived in families with more financial burdens. Interventions that reduce financial burdens and improve mental health of family members are needed, especially among CSHCN with CHD who are uninsured and have comorbidities or activity limitations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.