ArticlePsycho-oncology2018
Caring for the person with cancer: Information and support needs and the role of technology.
Article in Psycho-oncology, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Digital and Mobile Technologies to Promote Physical Health Behavior Change and Provide Psychological Support for Patients Undergoing Elective Surgery: Meta-Ethnography and Systematic Review.JMIR mHealth and uHealth · 2020Pooled it
- A cross-sectional study of factors influencing sexual health among spouses of patients with cervical cancer.PloS one · 2025Article
- Communication between Caregivers of Adults with Cancer and Healthcare Professionals: a Review of Communication Experiences, Associated Factors, Outcomes, and Interventions.Current oncology reports · 2024Review
- People affected by cancer and their carers from gender and sexually diverse communities: their experiences and the role of smartphone applications.BMC public health · 2024Article
- Mobile Health Apps, Family Caregivers, and Care Planning: Scoping Review.Journal of medical Internet research · 2024Article
- Voices of unpaid carers: problems and prospects in accessing palliative care and self-care information, resources and services.Palliative care and social practice · 2024Article
- Factors associated with posttraumatic growth among spouses of women diagnosed with gynaecological cancer: A cross-sectional study.Nursing open · 2023Article
- Development and validation of the information needs questionnaire for differentiated thyroid cancer patient with radioactive iodine therapy (INQ-DTC).Nursing open · 2022Article
- Designing Supportive e-Interventions for Partners of Men With Prostate Cancer Using Female Partners' Experiences: Qualitative Exploration Study.JMIR cancer · 2022Article
- A Smartphone Remote Monitoring App to Follow Up Colorectal Cancer Survivors: Requirement Analysis.JMIR cancer · 2022Article
- "We Have to Be Strong Ourselves": Exploring the Support Needs of Informal Carers of Aboriginal and Torres Strait Islander People with Cancer.International journal of environmental research and public health · 2021Article
- Article
- Leveraging Internet Search Data to Improve the Prediction and Prevention of Noncommunicable Diseases: Retrospective Observational Study.Journal of medical Internet research · 2020Observational
- Caring for the informal cancer caregiver.Current opinion in supportive and palliative care · 2019Review
- Development of a Smartphone App for Informal Carers of People With Cancer: Processes and Learnings.JMIR formative research · 2019Article
- A Smartphone App to Support Carers of People Living With Cancer: A Feasibility and Usability Study.JMIR cancer · 2019Article
- Caring for the person with cancer: Information and support needs and the role of technology.Psycho-oncology · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveInformal carers experience a variety of information and support needs when providing care to someone with cancer. It is unclear when carers seek information and what resources they access to support themselves throughout the cancer trajectory.
methodsA sample of 45 carers and 15 oncology nurses were recruited to participate in either focus groups or phone interviews.
resultsCarers in the study were more likely to be women (60%), caring for a spouse or partner (64.4%), living with the patient (86.7%), and hold a university degree (46.7%). The majority of oncology nurses were females (66.6%). Findings showed that carers had limited access to adequate information as needs arose. Supports used to address information needs included information booklets, the Internet, and communication with healthcare professionals or with other carers. Barriers in communication between nurses and carers impacted on the adequacy of information received. Participants reported that technology, such as smartphone applications, might be appropriate for improving information and support needs.
conclusionsCaring for someone with cancer is multifaceted. Carers need access to timely information to help them effectively manage patients' needs. Future studies should assess the role of contemporary approaches, such as digital technology, as a solution to the delivery of information and support for carers of people with cancer.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.