ArticleJournal of perinatology : official journal of the California Perinatal Association2018
Disparities in NICU quality of care: a qualitative study of family and clinician accounts.
Article in Journal of perinatology : official journal of the California Perinatal Association, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 70 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
70 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Understanding the Domains of Experiences of Black Mothers with Preterm Infants in the United States: A Systematic Literature Review.Journal of racial and ethnic health disparities · 2023Pooled it
- Pooled it
- Summary of best evidence on parental involvement in neonatal intensive care units: integrating family-centered and family-integrated care models.Global health action · 2026Review
- Social and structural disparities in family presence and engagement in the NICU.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Diversity, equity, and inclusion considerations for anti-racist, equity-focused NICU family mental health.Journal of perinatology : official journal of the California Perinatal Association · 2026Review
- Improving infant health equity: what have we learned, what do we do.Pediatric research · 2026Review
- "Each family has a story:" lived experiences of NICU families from staff perspectives.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Staff perspectives on racial inequities in the neonatal intensive care unit: the REJOICE study.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- "I will breastfeed until the pandemic has ceased to protect her at all costs": a qualitative analysis of black breastfeeding mothers during the COVID-19 pandemic.International breastfeeding journal · 2026Article
- A Video-Based Intervention Supporting Spanish-Speaking Fathers of Infants in the Neonatal Intensive Care Unit: Open-Label Pilot Study.JMIR formative research · 2025Article
- "Ringleader who has no power": a qualitative study of parent uncertainty during a NICU admission unrelated to prematurity.Maternal health, neonatology and perinatology · 2025Article
- Challenges and Solutions to Building Family-Staff Relationships in the NICU: A Qualitative Study.Hospital pediatrics · 2025Article
- A conceptual framework to integrate parents' cultural determinants in the care of preterm infants in the neonatal intensive care unit.Journal of health, population, and nutrition · 2025Review
- Maternal Social Determinants of Health and Risk of Perinatal Hypoxic-Ischemic Encephalopathy.JAMA neurology · 2025Article
- Developmental-Centered Care in Preterm Newborns: Scoping Review.Children (Basel, Switzerland) · 2025Review
- Investigation of mothers' elicited infant-directed speech and singing for preterm infants.Pediatric research · 2025Article
- Voices of parents of children with major congenital anomalies admitted to the NICU: initial diagnosis, hospitalization, and discharge home.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- Experiences of communication in the neonatal intensive care unit for mothers with a preferred language other than English.Journal of perinatology : official journal of the California Perinatal Association · 2025Article
- Identifying characteristics associated with genetic testing in the NICU.Journal of community genetics · 2025Article
- Racial and Ethnic Disparities in Mother's Milk Provision Among Mothers of Preterm Infants.JAMA network open · 2025Article
10 more citing papers are in PubMed but not listed here.
Corrections and comments
- Erratum issued
Authors and funding
4 authors.
Funding
Abstract
objectiveTo identify how family advocates and clinicians describe disparities in NICU quality of care in narrative accounts. STUDY
designQualitative analysis of a survey requesting disparity stories at the 2016 VON Quality Congress. Accounts (324) were from a sample of RNs (n = 114, 35%), MDs (n = 109, 34%), NNPs (n = 55, 17%), RN other (n = 4, 1%), clinical other (n = 25, 7%), family advocates (n = 16, 5%), and unspecified (n = 1, <1%).
resultsAccounts (324) addressed non-exclusive disparities: 151 (47%) language; 97 (30%) culture or ethnicity; 72 (22%) race; 41 (13%) SES; 28 (8%) drug use; 18 (5%) immigration status or nationality; 16 (4%) sexual orientation or family status; 14 (4%) gender; 10 (3%) disability. We identified three types of disparate care: neglectful care 85 (26%), judgmental care 85 (26%), or systemic barriers to care 139 (44%).
conclusionsNearly all accounts described differential care toward families, suggesting the lack of equitable family-centered care.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.