ArticleAge and ageing2018
A qualitative study of female caregiving spouses' experiences of intimate relationships as cognition declines in Parkinson's disease.
Article in Age and ageing, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
32 citing papers in PubMed, 1 synthesis or guideline pooled it, 62 citations in OpenAlex.
- Examining the lived experience of dementia with Lewy bodies through qualitative research: A systematic review.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Pooled it
- Beyond the burden: Measuring the quality of life impact of Parkinson's on family members/partners using FROM-16.Journal of Parkinson's disease · 2026Article
- Exploring the Impact of Parkinson's Disease on Marital Relationships.Nursing reports (Pavia, Italy) · 2026Article
- Treatment priorities from the perspectives of people with dementia with Lewy bodies: a reflexive thematic analysis.Frontiers in dementia · 2026Article
- Research on the perspectives of people affected by dementia with Lewy bodies: a scoping review.Alzheimer's research & therapy · 2025Article
- There is 'no cure for caregiving': the experience of women caring for husbands living with Parkinson's disease.International journal of qualitative studies on health and well-being · 2024Article
- Factors associated with self-rated health in people with late-stage parkinson's and cognitive impairment.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Benefits of Chinese family caregivers of patients with urostomy: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Caregiver Burden in Parkinson Disease: A Scoping Review of the Literature from 2017-2022.Journal of geriatric psychiatry and neurology · 2024Article
- Caregiver experiences of caring for family members with urostomy: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Compound impact of cognitive and physical decline: A qualitative interview study of people with Parkinson's and cognitive impairment, caregivers and professionals.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Changes and interruptions during COVID-19: caregivers of people with brain health challenges-A qualitative analysis.Frontiers in dementia · 2024Article
- Caregiver burden in Parkinson's disease: a mixed-methods study.BMC medicine · 2023Article
- Living with Parkinson's disease: A qualitative study of spousal perspectives.Journal of health psychology · 2023Article
- Association of 7-Day Profiles of Motor Activity in Marital Dyads with One Component Affected by Parkinson's Disease.Sensors (Basel, Switzerland) · 2023Article
- Safety perception in patients with advanced idiopathic Parkinson's disease - a qualitative study.Frontiers in aging neuroscience · 2023Article
- Living with Parkinson's disease: disease and medication experiences of patients and caregivers.International journal of qualitative studies on health and well-being · 2022Article
- Using former carers' expertise in peer support for carers of people with Parkinson's Disease.NPJ Parkinson's disease · 2022Article
- 'It's just incredible the difference it has made': family carers' experiences of a specialist Lewy body dementia Admiral Nurse service.Age and ageing · 2022Article
- Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English-speaking regions: Before and during the COVID-19 pandemic.International journal of geriatric psychiatry · 2022Article
Corrections and comments
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Authors and funding
6 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundthe complex and progressive nature of Parkinson's disease (PD) and cognitive impairment may necessitate a care provider, a role which is frequently undertaken by a spouse. Providing and receiving care related to dementia impacts on a couple's partnership and may result in decreased intimacy and relationship satisfaction.
objectiveto explore the changes in long-term intimate relationships in Parkinson's-related dementia, as perceived by spouses providing care to their partners.
methodsparticipants were identified using purposive sampling. Twelve female spouses whose partners had PD and mild cognitive impairment (PD-MCI), PD dementia (PDD) or dementia with Lewy bodies (DLB) completed semi-structured face-to-face interviews. Transcribed data were analysed using inductive thematic analysis. The consolidated criteria for reporting qualitative research (COREQ) were applied.
resultscouples' relationship satisfaction, intimacy and communication had already reduced in the mild cognitive impairment stage of PD, but the decline in these domains was markedly greater with the emergence of dementia. Increased spousal care responsibilities resulted in partners spending more time together, but feeling emotionally more distanced. Several participants' roles transitioned from spouse to caregiver and they reported feelings of frustration, resentment, anger, sadness and a worry for the future. Cognitive impairment was significantly harder to accept, manage and cope with than the motor symptoms of PD. Spouses acknowledged their marital commitments and exhibited acceptance, adjustment, resilience and various coping strategies.
conclusionthis is the first study exploring relationship satisfaction in Parkinson's-related dementia and has provided valuable insight into the changing patterns of intimate relationships.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.