Evidence map›Paper›PMID 29616427›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2018

People in states worse than dead according to the EQ-5D UK value set: would they rather be dead?

Lars Bernfort, Björn Gerdle, Magnus Husberg, Lars-Åke Levin

Abstract read
In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

  1. Trial
  2. Trial
  3. Developing a utility value set for the Gambling Quality of Life Scale-Brief (GQoLS-Brief) using a discrete choice experiment.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
  4. Article
  5. The QALY is ableist: on the unethical implications of health states worse than dead.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022
    Article
  6. Exploring EQ-5D-Y-3L Experience-Based VAS Values Derived Among Adolescents.Applied health economics and health policy · 2022
    Article
  7. Article
  8. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Lars BernfortDivision of Health Care Analysis, Department of Medical and Health Sciences, Linköping University, 58183, Linköping, Sweden. lars.bernfort@liu.se.ORCID 0000-0003-0537-3319
Björn GerdlePain and Rehabilitation Centre, and Department of Medical and Health Sciences, Linköping University, Linköping, Sweden.
Magnus HusbergDivision of Health Care Analysis, Department of Medical and Health Sciences, Linköping University, 58183, Linköping, Sweden.
Lars-Åke LevinDivision of Health Care Analysis, Department of Medical and Health Sciences, Linköping University, 58183, Linköping, Sweden.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeQuality-adjusted life years (QALYs) measure health by combining length and quality of life. QALYs constitute the effect side of incremental cost-effectiveness ratios, describing the results of health economic evaluations. The objectives of this study were to (1) investigate the prevalence of states worse than dead (SWD) when using the EuroQol-5D UK value set, and (2) to study to what extent SWDs are reasonable with a starting point in experience-based valuations of health states.

methodsData from a Swedish cross-sectional population survey were used. The survey was directed to 10,000 persons 65 years and older and its primary aim was to investigate the prevalence and consequences of chronic pain. The survey included questions reflecting life situation and well-being. Some of these were used in order to characterise people in SWD.

resultsSWD were found in 1.8% of the 6611 respondents. The prevalence of SWD increased with advancing age and was more common among women than men. The control questions used indicated that most of the persons being in SWD according to the EQ-5D UK value set most probably would not judge themselves to be in a SWD.

conclusionsThough negative QALY-weights are not very common, they constitute a non-negligible part of health states in a Swedish population 65 years and older. Prevalence of SWD is higher among women than men and increases with age. From responses to other questions on well-being and life situation, there is reason to doubt the reasonableness of experience-based negative QALY-weights in many cases.

Indexed as

Quality-Adjusted Life YearsAgedAged, 80 and overCross-Sectional StudiesFemaleHumansMaleMortalityPatient Reported Outcome MeasuresQuality of LifeSurveys and QuestionnairesEQ-5DHealth state valuationLife satisfactionPatient-reported outcomesQuality-adjusted life yearsStates worse than dead

Identifiers

PMID29616427
PMCPMC5997722

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.