Evidence map›Paper›PMID 29609600›Full record

ArticleBMC health services research2018

Screening for caregivers at risk: Extended validation of the short version of the Burden Scale for Family Caregivers (BSFC-s) with a valid classification system for caregivers caring for an older person at home.

Anna Pendergrass, Cintia Malnis, Uta Graf, Sabine Engel, Elmar Graessel

Registry-linked trialOpen access · goldAbstract read
In one paragraph

Article in BMC health services research, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07048743 (Psilocybin-assisted Existential, Attachment and Relational), which is not on this map. Cited by 40 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
40citing papers in PubMed, 1 pooled it
5.0field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT07048743 phase2recruitingnot on this mapstarted 2025, after this paper: background citation

Psilocybin-assisted Existential, Attachment and Relational (PEARL) Therapy for Caregivers of Patients With Advanced Cancer: A Phase II Open-Label Trial

TypeinterventionalSponsorUniversity Health Network, TorontoRan2025 to 2027Enrolled15ConditionsCaregiver DistressArmsPsilocybin
3 · Its place in the literature

Who cites it

40 citing papers in PubMed, 1 synthesis or guideline pooled it, 87 citations in OpenAlex.

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  17. [Care-related Termination of Employment among Informal Caregivers of Elderly Persons: Identification of a Risk Profile].Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)) · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 2 institutions in 1 country.

Anna PendergrassCenter for Health Services Research in Medicine, Department for Psychiatry and Psychotherapy, Friedrich-Alexander-University Erlangen-Nuremberg (Germany), Schwabachanlage 6, 91054, Erlangen, Germany. Anna.Pendergrass@uk-erlangen.de.
Cintia MalnisCenter for Health Services Research in Medicine, Department for Psychiatry and Psychotherapy, Friedrich-Alexander-University Erlangen-Nuremberg (Germany), Schwabachanlage 6, 91054, Erlangen, Germany.
Uta GrafCenter for Health Services Research in Medicine, Department for Psychiatry and Psychotherapy, Friedrich-Alexander-University Erlangen-Nuremberg (Germany), Schwabachanlage 6, 91054, Erlangen, Germany.
Sabine EngelThe Catholic University of Applied Sciences of North Rhine-Westphalia Department Social Services, Campus Paderborn (Germany), Leostraße 19, 33098, Paderborn, Germany.
Elmar GraesselCenter for Health Services Research in Medicine, Department for Psychiatry and Psychotherapy, Friedrich-Alexander-University Erlangen-Nuremberg (Germany), Schwabachanlage 6, 91054, Erlangen, Germany.
Friedrich-Alexander-Universität Erlangen-Nürnberg · DECatholic University of Applied Sciences of North Rhine – Westphalia · DE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundInformal caregivers' (CGs') subjective burden is an important aspect of the care situation because it is linked to various outcomes such as health, mortality risk, institutionalization, and caregiving style. The aims of this study were a) to examine the convergent and discriminant validity of the 10-item short version of the Burden Scale for Family Caregivers (BSFC-s) and b) to develop a valid classification system for interpreting BSFC-s scores.

methodsIn this cross-sectional study, we analyzed data obtained from 386 informal CGs who applied for an initial grade or upgrade of the care level for the care recipient at the Medical Service of Compulsory Health Insurance Funds of Bavaria (Germany). To validate the BSFC-s, we analyzed the reliability and the convergent/discriminant validity. We calculated correlations with the short form of the Giessen Symptom Complaints List (GBB-24), the Caregiver Strain Index (CSI), the personal further development sub-scale of the Berlin Inventory of Caregivers' Burden with Dementia Patients (BIZA-D), and other scales for establishing informal CGs' situations. To develop the classification system, we compared the percentile ranks of the GBB-24 with the respective BSFC-s sum scores and their distributions and derived three classification categories.

resultsResults confirmed the convergent and discriminant validity of the BSFC-s (GBB-24: r = 0.68; CSI: r = 0.70; BIZA-D: r = 0.16; p < 0.001). For informal CGs with low subjective burden, the risk of physical psychosomatic complaints was elevated to a less than average level (BSFC-s scores of 0-4). In those with a moderate subjective burden (BSFC-s scores of 5-14), the risk was elevated. In those with a high burden (BSFC-s scores of 15-30), the risk was substantially elevated.

conclusionsThe BSFC-s is a valid scale for measuring subjective burden in informal CGs. The risk of physical psychosomatic complaints, which is a consequence of subjective CG burden, can be determined by using the valid classification system to deduce the necessity for action and to give concrete recommendations for interventions. The BSFC-s should therefore be employed as a screening instrument in medical contexts and in counseling services for informal CGs.

Indexed as

Cost of IllnessAdaptation, PsychologicalAgedCaregiversCross-Sectional StudiesDementiaEarly DiagnosisEmpathyEmploymentFemaleGermanyHome NursingHumansInstitutionalizationMaleMiddle AgedCaregiver burdenInformal caregiversQuestionnaireShort version of the burden scale for family caregiversValidation

Identifiers

PMID29609600
PMCPMC5880098
OpenAlexW2801189217

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.