ArticleJournal of palliative medicine2018
Surrogate Decision Makers' Perspectives on Family Members' Prognosis after Intracerebral Hemorrhage.
Article in Journal of palliative medicine, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 2 of them syntheses that pooled it.
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Who cites it
17 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Shared Decision-Making for Patients with Stroke in Neurocritical Care: A Qualitative Meta-Synthesis.Neurocritical care · 2025Pooled it
- Pooled it
- One voice at the bedside: aligning goals of care and prognostic communication in trauma and acute care surgery.Trauma surgery & acute care open · 2026Article
- Communicating with Families after Severe Acute Brain Injury.Neurocritical care · 2025Review
- Timing of neuroprognostication in the ICU.Current opinion in critical care · 2025Review
- Care of the Patient Nearing the End of Life in the Neurointensive Care Unit.Neurocritical care · 2024Review
- A Hospice Transitions Program for Patients in the Emergency Department.JAMA network open · 2024Article
- Article
- Barriers to Surrogate Application of Patient Values in Medical Decisions in Acute Stroke: Qualitative Study in a Biethnic Community.Neurocritical care · 2024Article
- Long-Term Psychological Distress Among Surrogate Decision Makers for Mexican American and Non-Hispanic White Patients With Severe Stroke.Neurology · 2024Article
- Prognostic Discordance Among Parents and Physicians Caring for Infants with Neurologic Conditions.The Journal of pediatrics · 2023Observational
- Prognostic Language in Critical Neurologic Illness: A Multicenter Mixed-Methods Study.Neurology · 2023Article
- Taking a Chance to Recover: Families Look Back on the Decision to Pursue Tracheostomy After Severe Acute Brain Injury.Neurocritical care · 2022Article
- Prognostic Uncertainty in Critically Ill Patients with Traumatic Brain Injury: A Multicenter Qualitative Study.Neurocritical care · 2021Article
- End-of-Life Care Decision-Making in Stroke.Frontiers in neurology · 2021Review
- Variability in Palliative Care Use after Intracerebral Hemorrhage at US Hospitals: A Multilevel Analysis.Neuroepidemiology · 2019Article
- Observation on the Effect of Solution-Focused Approach Combined with Family Involvement in WeChat Platform Management on Inpatients with Intracerebral Hemorrhage.Journal of healthcare engineeringArticle
Corrections and comments
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Authors and funding
10 authors.
Funding
Abstract
backgroundSurrogate communication with providers about prognosis in the setting of acute critical illness can impact both patient treatment decisions and surrogate outcomes.
objectivesTo examine surrogate decision maker perspectives on provider prognostic communication after intracerebral hemorrhage (ICH).
designSemistructured interviews were conducted and analyzed qualitatively for key themes. SETTING/SUBJECTS: Surrogate decision makers for individuals admitted with ICH were enrolled from five acute care hospitals.
resultsFifty-two surrogates participated (mean age = 54, 60% women, 58% non-Hispanic white, 13% African American, 21% Hispanic). Patient status at interview was hospitalized (17%), in rehabilitation/nursing facility (37%), deceased (38%), hospice (4%), or home (6%). Nineteen percent of surrogates reported receiving discordant prognoses, leading to distress or frustration in eight cases (15%) and a change in decision for potentially life-saving brain surgery in three cases (6%). Surrogates were surprised or confused by providers' use of varied terminology for the diagnosis (17%) (e.g., "stroke" vs. "brain hemorrhage" or "brain bleed") and some interpreted "stroke" as having a more negative connotation. Surrogates reported that physicians expressed uncertainty in prognosis in 37%; with physician certainty in 56%. Surrogate reactions to uncertainty were mixed, with some surrogates expressing a negative emotional response (e.g., anxiety) and others reporting understanding or acceptance of uncertainty.
conclusionsCurrent practice of prognostic communication in acute critical illness has many gaps, leading to distress for surrogates and variability in critical treatment decisions. Further work is needed to limit surrogate distress and improve the quality of treatment decisions.
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