ArticleBMJ open2018
Online stroke forum as source of data for qualitative research: insights from a comparison with patients' interviews.
Article in BMJ open, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
19 citing papers in PubMed, 48 citations in OpenAlex.
- Medication Adherence Following Stroke and TIA: A Qualitative Synthesis of Patient, Caregiver and Clinician Perspectives.Neurology international · 2026Review
- Information Needs and Preferences of Men With Breast Cancer: A Qualitative Analysis of Internet Forum Posts.The breast journal · 2026Article
- Evaluating Peer Online Forums to Support Health: Ethical and Practical Challenges.Journal of medical Internet research · 2025Article
- Factors Influencing Recovery From Pediatric Stroke Based on Discussions From a UK-Based Online Stroke Community: Qualitative Thematic Study.Journal of medical Internet research · 2024Article
- Exploring the Types of Social Support Exchanged by Survivors of Pediatric Stroke and Their Families in an Online Peer Support Community: Qualitative Thematic Analysis.Journal of medical Internet research · 2024Article
- Carers' experiences and perspectives of the use of anticholinergic medications in people living with dementia: Analysis of an online discussion forum.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Myasthenia Gravis: utilising cross-platform quantitative content analysis to uncover and validate unmet needs.Frontiers in neurology · 2024Article
- Gambling harms, stigmatisation and discrimination: A qualitative naturalistic forum analysis.PloS one · 2024Article
- Experiences of Diagnosis, Symptoms, and Use of Reliever Inhalers in Patients With Asthma and Concurrent Inducible Laryngeal Obstruction or Breathing Pattern Disorder: Qualitative Analysis of a UK Asthma Online Community.Journal of medical Internet research · 2023Article
- Pushing through the Barriers: Peer Advice to Increase Physical Activity and Reduce Dementia Risk from Participants in a Massive Open Online Alzheimer's Focused Course.The journal of prevention of Alzheimer's disease · 2023Article
- Article
- Online Ethnography for People With Chronic Conditions: Scoping Review.Journal of medical Internet research · 2022Article
- Patient-Reported Reasons for Switching or Discontinuing Statin Therapy: A Mixed Methods Study Using Social Media.Drug safety · 2022Article
- Experiences of exercise in patients with asthma: a qualitative analysis of discussions in a UK asthma online community.BJGP open · 2022Article
- Patient and family social media use surrounding a novel treatment for a rare genetic disease: a qualitative interview study.Genetics in medicine : official journal of the American College of Medical Genetics · 2020Article
- A qualitative analysis of Internet forum discussions on hard flaccid syndrome.International journal of impotence research · 2020Article
- Parental understanding of our communication of morbidity associated with paediatric cardiac surgery: a qualitative study.BMJ paediatrics open · 2020Article
- How is poststroke fatigue understood by stroke survivors and carers? A thematic analysis of an online discussion forum.BMJ open · 2019Article
- Caregivers' perspectives and experiences of withdrawing acetylcholinesterase inhibitors and memantine in advanced dementia: a qualitative analysis of an online discussion forum.BMC palliative care · 2019Article
Corrections and comments
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Authors and funding
4 authors at 3 institutions in 4 countries.
Funding
Abstract
objectiveTo determine the appropriateness of an online forum compared with face-to-face interviews as a source of data for qualitative research on adherence to secondary prevention medications after stroke.
designA comparison of attributes of two data sources, interviews and a forum, using realistic evaluation; a comparison of themes around adherence according to the Perceptions and Practicalities Approach (PAPA) framework.
settingInterviews were conducted in UK GP practices in 2013 and 2014; online posts were written by UK stroke survivors and family members taking part in the online forum of the Stroke Association between 2004 and 2011.
participants42 interview participants: 28 stroke survivors (age range 61-92 years) and 14 caregivers (85% spouses). 84 online forum participants: 49 stroke survivors (age range 32-72 years) and 33 caregivers (60% sons/daughters).
results10 attributes were identified within the two data sources and categorised under three domains (context, mechanisms and outcomes). Participants' characteristics of forum users were often missing. Most forum participants had experienced a stroke within the previous 12 months, while interviewees had done so 1-5 years previously.All interview themes could be matched with corresponding themes from the forum. The forum yielded three additional themes: influence of bad press on taking statins, criticisms of clinicians' prescribing practices and caregiver burden in assisting with medications and being advocates for survivors with healthcare professionals.
conclusionsAn online forum is an appropriate source of data for qualitative research on patients' and caregivers' issues with adherence to secondary prevention stroke medications and may offer additional insights compared with interviews, which can be attributed to differences in the approach to data collection.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.