ArticleAlzheimer's & dementia : the journal of the Alzheimer's Association2018
What features of stigma do the public most commonly attribute to Alzheimer's disease dementia? Results of a survey of the U.S. general public.
Article in Alzheimer's & dementia : the journal of the Alzheimer's Association, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 37 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
37 citing papers in PubMed.
- The effect of framing on attitudes towards Alzheimer's disease. A comparative study between younger and older adults.PloS one · 2022Trial
- The relative contributions of biomarkers, disease modifying treatment, and dementia severity to Alzheimer's stigma: A vignette-based experiment.Social science & medicine (1982) · 2022Trial
- Effectiveness of Scenario-Driven Virtual Reality for Improving Nursing Students' Behavioral Responses Toward Older Adults With Dementia: Protocol for a 4-Arm Postintervention Study.JMIR research protocols · 2026Article
- Sequential mediation of social resources, affiliate stigma, loneliness, and positive aspects of caregiving among Chinese and Korean American dementia caregivers.International journal of nursing sciences · 2026Article
- The Roles of Empathy, Proximity, and Identity in Alzheimer's Disease Stigma.Behavioral sciences (Basel, Switzerland) · 2026Article
- Effects of caregiving experience on expectations of becoming an Alzheimer's disease caregiver in the future.The journals of gerontology. Series B, Psychological sciences and social sciences · 2026Article
- Public profiles in Alzheimer's disease stigma: Unsupported, discriminated, and alone.Journal of public health research · 2025Article
- "Advances in biomarker discovery and diagnostics for alzheimer's disease".Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2025Review
- Are Knowledge and Interpersonal Contact Cures for Alzheimer's Stigma? Data From Caregivers Offer Clues.Stigma and health · 2025Article
- Navigating Awareness and Strategies to Support Dementia Advocacy on Social Media During World Alzheimer's Month: Infodemiology Study.JMIR infodemiology · 2024Article
- A survey study of Alzheimer's stigma among Black adults: intersectionality of Black identity and biomarker diagnosis.Ethnicity & health · 2024Article
- Self-Testing for Dementia: A Phenomenological Analysis of Fear.The Journal of medical humanities · 2024Article
- Double-Edged Sword: A Positive Brain Scan Result Heightens Confidence in an Alzheimer's Diagnosis But Also Leads to Higher Stigma Among Older Adults in a Vignette-Based Experiment.The journals of gerontology. Series B, Psychological sciences and social sciences · 2024Article
- What Makes a Better Life for People Facing Dementia? Toward Dementia-Friendly Health and Social Policy, Medical Care, and Community Support in the United States.The Hastings Center report · 2024Article
- Alzheimer's Disease Biomarker Decision-Making among Patients with Mild Cognitive Impairment and Their Care Partners.The journal of prevention of Alzheimer's disease · 2024Article
- Development of a method and an assessment construct for person-centered translation of dementia public stigma scales.Frontiers in public health · 2023Article
- Putting participants and study partners FIRST when clinical trials end early.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2022Article
- Preclinical Alzheimer Disease and the Electronic Health Record: Balancing Confidentiality and Care.Neurology · 2022Article
- Moving beyond disclosure: Stages of care in preclinical Alzheimer's disease biomarker testing.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2022Article
- Racial and Ethnic Differences in Hospice Use and Hospitalizations at End-of-Life Among Medicare Beneficiaries With Dementia.JAMA network open · 2022Article
Corrections and comments
- Commented on by
Authors and funding
3 authors.
Funding
Abstract
introductionUnderstanding the prevalence of beliefs, attitudes, and expectations about Alzheimer's disease dementia in the public could inform strategies to mitigate stigma.
methodsRandom sample of 317 adults from the U.S. public was analyzed to understand reactions toward a man with mild-stage Alzheimer's disease dementia.
resultsIn adjusted analyses, over half of respondents expected the person to be discriminated against by employers (55.3%; 95% confidence interval [CI] = 47.0-65.2) and be excluded from medical decision-making (55.3%; 95% CI = 46.9-65.4). Almost half expected his health insurance would be limited based on data in the medical record (46.6%; 95% CI = 38.0-57.2), a brain imaging result (45.6%, 95% CI = 37.0-56.3), or genetic test result (44.7%; 95% CI = 36.0-55.4). DISCUSSION: Public education and policies are needed to address concerns about employment and insurance discrimination. Studies are needed to discover how advances in diagnosis and treatment may change Alzheimer's disease stigma.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.