Evidence map›Paper›PMID 29570983›Full record

ArticleJournal of adolescent and young adult oncology2018

Survivorship Care Planning for Young Adults After Cancer Treatment: Understanding Care Patterns and Patient-Reported Outcomes.

Dava Szalda, Marilyn M Schapira, Linda A Jacobs, Steven C Palmer, Carolyn Vachani, James Metz, Christine Hill-Kayser

Abstract read
In one paragraph

Article in Journal of adolescent and young adult oncology, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Trial
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Dava Szalda1 Division of Oncology, Abramson Cancer Center, Perelman School of Medicine at the University of Pennsylvania , Philadelphia, Pennsylvania.
Marilyn M Schapira3 University of Pennsylvania Center for Health Equity Research & Promotion , Philadelphia, Pennsylvania.
Linda A Jacobs1 Division of Oncology, Abramson Cancer Center, Perelman School of Medicine at the University of Pennsylvania , Philadelphia, Pennsylvania.
Steven C Palmer1 Division of Oncology, Abramson Cancer Center, Perelman School of Medicine at the University of Pennsylvania , Philadelphia, Pennsylvania.
Carolyn Vachani4 Department of Radiation Oncology, Abramson Cancer Center, Department of Radiation Oncology, Perelman School of Medicine at the University of Pennsylvania , Philadelphia, Pennsylvania.
James Metz4 Department of Radiation Oncology, Abramson Cancer Center, Department of Radiation Oncology, Perelman School of Medicine at the University of Pennsylvania , Philadelphia, Pennsylvania.
Christine Hill-Kayser2 Division of Oncology, The Children's Hospital of Philadelphia , Philadelphia, Pennsylvania.

Funding

Physician Scientist Training in Clinical OncologyK12CA076931 · NCI · UNIVERSITY OF PENNSYLVANIA · PI STEPHEN Patrick HUNGER, LYNN M. SCHUCHTER · 1997 to 2026
$16.5M
NCI NIH HHS K12 CA076931
6 · The paper itself

Abstract

purposeYoung adult survivors (YAS) of cancer experience late effects of treatment similar to older adult survivors (AS). Online health tools such as Internet-based survivorship care plans (SCPs) can provide access to information about late effects and symptom management, but little is known about SCP patterns of use among YAS.

methodsAn Internet-based cross-sectional survey was completed over 24 months. Participants were individuals diagnosed with cancer between 18 and 39 years (YAS, n = 611) or 40-60 years (AS, n = 1742), who were 2-20 years postdiagnosis, and who created an Internet-based SCP. Demographics, treatment-related variables, satisfaction with SCP, communication of SCP, and patient-reported late effects (fatigue, neurocognitive, sexual, cardiovascular, pulmonary, or second cancers) were collected.

resultsYAS were primarily female (71%), Caucasian (78%), college educated (65%), and generated the SCP without assistance (76%). YAS reported satisfaction with content (93%) and shared content with providers (71%). A higher proportion of YAS than AS were male (29% vs. 17%, p < 0.001), lived internationally (23% vs. 17%, p = 0.003), and endorsed oncologist-led survivorship care (47% vs. 41%, p = 0.001). YAS reported concerns about neurocognitive performance (56%) and fatigue (50%). Overall, YAS reported equivalent or fewer late effects than AS across all domains.

conclusionsYAS report high satisfaction with the online SCP, as well as a high symptom burden, although the latter were reported less than for AS.

Indexed as

Patient Reported Outcome MeasuresAdolescentAdultChildChild, PreschoolCross-Sectional StudiesFemaleHumansMaleNeoplasmsPatient Care PlanningSurvivorshipYoung Adultinternetpatient-reported outcomessurvivorshipsurvivorship care plan

Identifiers

PMID29570983
PMCPMC6909723

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.