ArticlePediatrics2018
Changes in Parental Hopes for Seriously Ill Children.
Article in Pediatrics, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
29 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Parental hope in paediatric palliative care: a systematic review of the ethical issues in evidence-based literature.BMC medical ethics · 2026Pooled it
- Optimistic vs Pessimistic Message Framing in Communicating Prognosis to Parents of Very Preterm Infants: The COPE Randomized Clinical Trial.JAMA network open · 2024Trial
- Language of Hope in Conversations between Pediatric Oncologists, Children with Advanced Cancer, and their Families.Research square · 2026Article
- Hope in Pediatric Palliative Care: A Systematic Review.Children (Basel, Switzerland) · 2026Review
- How are agency and autonomy understood in children's palliative and end-of-life care?: A narrative review.Palliative care and social practice · 2026Review
- Critical Functional Domains in Pediatric Onset TUBB4A-Related Leukodystrophy: A Clinical and Caregiver's Perspective.Pediatric neurology · 2025Article
- Development and acceptability testing of a tracheostomy decision support video for parents.PEC innovation · 2025Article
- Exploration Into Lived Experiences of Multiple Sulfatase Deficiency-Affected Individuals and Their Families.Journal of child neurology · 2025Article
- Experiences and Hope in Caregivers of Children With Aicardi Goutières Syndrome.Journal of child neurology · 2025Article
- A Qualitative Study of CMC Caregivers' Perspectives about their Emotional Well-Being.Journal of pain and symptom management · 2025Article
- Supporting parents' emotional and mental health in the antenatal consultation.Journal of perinatology : official journal of the California Perinatal Association · 2025Review
- Health care utilization after enrollment in an outpatient structured clinical program for children with medical complexity.Paediatrics & child health · 2024Article
- Crossroads of parental decision making: Intersections of hope, communication, relationships, and emotions.Journal of child health care : for professionals working with children in the hospital and community · 2023Article
- Making room for life and death at the same time - a qualitative study of health and social care professionals' understanding and use of the concept of paediatric palliative care.BMC palliative care · 2022Article
- Trust in Physicians, Anxiety and Depression, and Decision-Making Preferences among Parents of Children with Serious Illness.Journal of palliative medicine · 2022Article
- Conflicting goals and obligations: Tensions affecting communication in pediatric oncology.Patient education and counseling · 2022Article
- Parental views on communication between children and clinicians in pediatric oncology: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Hope level and associated factors among parents of retinoblastoma patients during COVID-19 pandemic: a cross-sectional study.BMC psychiatry · 2021Article
- Providing Palliative and Hospice Care to Children, Adolescents and Young Adults with Cancer.Seminars in oncology nursing · 2021Review
- Hope During COVID-19 Lockdown.Cureus · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
backgroundHopes of parents of children with serious illness play an important role in decision-making and coping. Little is known about how parent hopes change over time. We describe the changes in parent hopes across multiple domains and time intervals, examine hopes in a subgroup of parents whose child died, and explore the maintenance of domains over time.
methodsIn a mixed-methods prospective cohort study on decision-making, parents of seriously ill children reported demographic characteristics and hopes at baseline and reported any changes in hopes at 4-, 8-, 12-, 16-, and 20-month follow-up visits. Hopes were coded into 9 domains. Hope changes and domain changes were identified for each parent at each visit.
resultsOne hundred and ninety-nine parents of 158 patients most often reported hopes in the domains of quality of life (75%), physical body (69%), future well-being (47%), and medical care (34%). Hope percentages increased over time for quality of life (84%), future well-being (64%), and broader meaning (21%). The hope domains reported by parents of children who died were similar to the rest of the sample. The majority of parents who completed 5 to 6 follow-up visits changed at least 1 domain. At the individual parent level, some domains revealed considerable change over time, whereas other domains were stable among a subset of parents.
conclusionsThe specific hopes and overall areas of hope of parents of seriously ill children vary over time, although most hopes fall within 4 major areas. Accordingly, clinicians should regularly check with parents about their current hopes.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.