ArticleSpinal cord2018
Relatives of people with spinal cord injury: a qualitative study of caregivers' metamorphosis.
Article in Spinal cord, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
8 citing papers in PubMed.
- The patient reported transformation of identity and voice in life-limiting illness.Palliative care and social practice · 2026Article
- Acceptability of Overground Wearable Powered Exoskeletons for People with Spinal Cord Injury: A Multicenter Qualitative Study.Biomimetics (Basel, Switzerland) · 2025Article
- Long-term prediction of functional independence using adjusted and unadjusted single items of the functional independence measure (FIM) at discharge from rehabilitation.The journal of spinal cord medicine · 2024Observational
- Coping, Social Support, and Caregiver Well-Being With Families Living With SCI: A Mixed Methods Study.Topics in spinal cord injury rehabilitation · 2022Article
- Nerve transfer surgery in spinal cord injury: online information sharing.BMC neurology · 2021Article
- Family-centered empowerment process in individuals with spinal cord injury living in Iran: a grounded theory study.Spinal cord · 2020Article
- Impact of simulation-based learning on family caregivers during the rehabilitation period of individuals with spinal cord injury.Spinal cord · 2020Article
- Qualitative research provides insights into the experiences and perspectives of people with spinal cord injuries and those involved in their care.Spinal cord · 2018Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
STUDY
designQualitative study.
objectiveTo detect the major challenges and needs reported by family member caregivers of people with spinal cord injury (SCI).
settingFamily member caregivers of people with SCI and expert professionals were evaluated. This study was conducted in Spain, and most of the participants attended the National Paraplegics Hospital of Toledo.
methodsWe performed 25 semi-structured interviews. The data were analyzed from a phenomenological perspective using the Colaizzi method.
resultsThe metamorphosis of the caregiver is a complex personal and family-related process. Analysis of the adjustment phase of the caregiving role allowed us to describe three stages, patterns, and trends. Five basic needs were identified.
conclusionsPeople with SCI and their primary caregivers experienced changes in every sphere of their lives. Their most important needs were psychological support, social support, economic resources, information, training throughout the process of suffering, and the creation of informal groups of mutual aid.
Indexed as
Identifiers
29563575What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.