ArticleThe Gerontologist2018
A Needs-led Framework for Understanding the Impact of Caring for a Family Member With Dementia.
Article in The Gerontologist, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Barriers for access and utilization of dementia care services in Europe: a systematic review.BMC geriatrics · 2025Pooled it
- The needs and unmet needs for people living with dementia, caregivers and care workers in dementia health care systems: a systematic review.Frontiers in public health · 2025Pooled it
- Reliability, validity and relevance of needs assessment instruments for informal dementia caregivers: a psychometric systematic review.JBI evidence synthesis · 2020Pooled it
- 'Caring beyond capacity' during the coronavirus pandemic: resilience and family carers of people with dementia from the IDEAL cohort.International journal of care and caring · 2024Article
- Evaluating the effects of a multicomponent support service for people recently diagnosed with dementia and their carers: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- "Living Well" Trajectories Among Family Caregivers of People With Mild-to-Moderate Dementia in the IDEAL Cohort.The journals of gerontology. Series B, Psychological sciences and social sciences · 2022Article
- Impact of COVID-19 restrictions on carers of persons with dementia in the UK: a qualitative study.Age and ageing · 2021Article
- 'I know his needs better than my own' - carers' support needs when caring for a person with dementia.Scandinavian journal of caring sciences · 2021Article
- Measuring Quality of Life in Carers of People With Dementia: Development and Psychometric Evaluation of Scales measuring the Impact of DEmentia on CARers (SIDECAR).The Gerontologist · 2021Article
- UK General Population Utility Values for the SIDECAR-D Instrument Measuring the Impact of Caring for People With Dementia.Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research · 2020Article
- A need-based, multi-level, cross-sectoral framework to explain variations in satisfaction of care needs among people living with dementia.BMC health services research · 2020Article
- Development of an Item Pool for a Needs-Based Measure of Quality of Life of Carers of a Family Member with Dementia.The patient · 2019Article
- "This is our life now. Our new normal": A qualitative study of the unmet needs of carers of stroke survivors.PloS one · 2019Article
- Becoming a Family Caregiver to a Person With Dementia: A Literature Review on the Needs of Family Caregivers.SAGE open nursingReview
- A Comprehensive Model of Factors Associated With Capability to "Live Well" for Family Caregivers of People Living With Mild-to-Moderate Dementia: Findings From the IDEAL Study.Alzheimer disease and associated disordersArticle
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
Background and Objectives: Approximately half the care for people with dementia is provided by families. It is therefore imperative that research informs ways of maintaining such care. In this study, we propose that a needs-led approach can provide a useful, novel means of conceptualizing the impact of caring on the lives of family carers. Our aim was to develop and present a needs-led framework for understanding how providing care impacts on carers' fulfilment of needs. Design and Methods: In this qualitative study, we conducted 42 semistructured interviews with a purposively diverse sample of family carers to generate nuanced contextualized accounts of how caring impacted on carers' lives. Our inductive thematic analysis focused upon asking: "What need is being impacted here?" in order to generate a needs-led framework for understanding. Results: Nine themes were widely endorsed. Each completed the sentence: "Being a carer impacts on fulfilling my need to/for….": Freedom; feel close to my relative; feel in control of my life; be my own person; protect my relative; share/express my thoughts and feelings; take care of myself; feel connected to the people around me; get things done. Discussion and Implications: These needs echo those from other research areas, with relational needs emerging as particularly central. The needs-led approach offers a perspective that is able to capture both stresses and positive aspects of caregiving. We recommend that clinical interviewing using Socratic questioning to discover human needs that are being impacted by caring would provide a valuable starting point for care planning.
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