ArticleElectronic physician2017
Exploring Iranian β-Thalassemia major patients' perception of barriers and facilitators of adherence to treatment: A qualitative study.
Article in Electronic physician, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed.
- Experiences of Iranian Patients with Thalassemia Major Regarding Their Palliative and Supportive Care Needs: A Qualitative Content Analysis.International journal of community based nursing and midwifery · 2025Article
- Treatment adherence and associated factors in older people with type 2 diabetes: A qualitative study.Nursing open · 2023Article
- The psychosocial challenges of mothers of children with thalassemia: A qualitative study.Journal of education and health promotion · 2022Article
- Experiences of the Patients with Behcet's Syndrom from Adherence to Treatment: A Qualitative Content Analysis.International journal of community based nursing and midwifery · 2021Article
- Patient Perspective on Iron Chelation Therapy: Barriers and Facilitators of Medication Adherence.Journal of patient experience · 2021Article
- Experience of Uncertainty in Patients with Thalassemia Major: A Qualitative Study.International journal of hematology-oncology and stem cell research · 2020Article
- Amino acids and fatty acids in patients with beta thalassemia major.Acta bio-medica : Atenei Parmensis · 2020Article
- Which Matters More for Medication Adherence Among Disabled People in Shanghai, China: Family Support or Primary Health Care?Inquiry : a journal of medical care organization, provision and financingArticle
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3 authors.
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Abstract
Background: Despite the clinical importance of adherence to treatment in β-Thalassemia Major (β-TM) patients, poor adherence remains a prevalent and persistent problem in these patients. Objective: The aim of this study was to explore Iranian β-TM patients' perception regarding the barriers and facilitators of adherence to their treatments. Methods: In this qualitative study, data were collected using purposeful sampling and semi-structured interviews with 18 β-TM patients, 3 family members and 5 healthcare professionals (total=26) in Sari, northern Iran, between August 2015 and May 2017. Data were analyzed using conventional content analysis with the support of MAXQDA software. All the interviews were transcribed verbatim. Data were coded and grouped under specific categories. Results: We identified and classified the perceived barriers of patients' adherence to treatment into six main categories including: (I) long distance challenges, (II) delayed occurrence of complications, (III) fatigue of healthcare providers, (IV) staff workload, (V) insufficient follow-up of healthcare workers, and (VI) busy everyday life. Also, nine main categories emerged as facilitators including: (I) concern of appearance changing, (II) outcomes of treatment, (III) good awareness, (IV) parental monitoring, (V) fear of complications, (VI) social activity, (VII) marriage as a facilitator, (VIII) friendly interaction with the medical staff, and (IX) trusting the medical staff. Conclusion: Our findings provide a broad range of context-specific facilitators and barriers to treatment adherence perceived by Iranian β-TM patients. These factors improve our understanding of the complex and multifactorial nature of adherence to treatments. Health care providers can use these findings in designing and implementing appropriate interventions to promote β-TM patients' adherence to treatment.
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