ArticleAmerican journal of Alzheimer's disease and other dementias2018
Staff Perspectives of Barriers to Access and Delivery of Palliative Care for Persons With Dementia in Long-Term Care.
Article in American journal of Alzheimer's disease and other dementias, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
12 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Palliative Care in Early Dementia.Journal of pain and symptom management · 2024Pooled it
- Referral criteria to specialist palliative care for patients with dementia: A systematic review.Journal of the American Geriatrics Society · 2021Pooled it
- Nutrition and Non-Nutrition-Related Challenges Predict Time to Death in Long-Term Care Residents: A Retrospective Chart Review.Journal of multidisciplinary healthcare · 2023Article
- Prognostic decision-making about imminent death within multidisciplinary teams: a scoping review.BMJ open · 2022Article
- Care dependency of patients and residents at the end of life: A secondary data analysis of data from a cross-sectional study in hospitals and geriatric institutions.Journal of clinical nursing · 2022Article
- How Do We Talk With People Living With Dementia About Future Care: A Scoping Review.Frontiers in psychology · 2022Article
- "A good death but there was all this tension around"- perspectives of residential managers on the experience of delivering end of life care for people living with dementia.BMC geriatrics · 2021Article
- The Attitudes of Physicians and the General Public toward Prognostic Disclosure of Different Serious Illnesses: a Korean Nationwide Study.Journal of Korean medical science · 2020Article
- Palliative care for nursing home patients with dementia: service evaluation and risk factors of mortality.BMC palliative care · 2020Article
- Nursing Staff Needs in Providing Palliative Care for Persons With Dementia at Home or in Nursing Homes: A Survey.Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing · 2020Article
- A study protocol for the development of a multivariable model predicting 6- and 12-month mortality for people with dementia living in residential aged care facilities (RACFs) in Australia.Diagnostic and prognostic research · 2020Article
- Palliative Care in Advanced Dementia.Frontiers in psychiatry · 2020Review
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Dementia is a syndrome that is progressive, degenerative, and terminal. The palliative care philosophy aims to maximize quality of life for the dying individual and is both beneficial for and underused with persons dying with dementia.
objectivesThe purpose of this study was to investigate the experiences of long-term care staff delivering palliative care to individuals with dementia to determine how care was delivered, to learn which guidelines were used, and whether policies affected the delivery of palliative care.
methodsTwenty-two staff participants were interviewed. Their experiences were interpreted using phenomenological methodology.
resultsFindings yielded 3 key themes: confusion, resource shortages, and communication difficulties.
conclusionImplications for practice include clarification of terminology surrounding palliative care, education of families about dementia and palliative care, better resource management, and the need to address when palliative care best fits within the dementia process.
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