ArticleJournal of cancer education : the official journal of the American Association for Cancer Education2019
After Childhood Cancer: a Qualitative Study of Family Physician, Parent/Guardian, and Survivor Information Needs and Perspectives on Long-Term Follow-up and Survivorship Care Plans.
Article in Journal of cancer education : the official journal of the American Association for Cancer Education, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it, 34 citations in OpenAlex.
- Barriers and facilitators associated with long-term follow-up care for childhood, adolescent, and young adult cancer survivors: a systematic review.BMC health services research · 2025Pooled it
- Survivorship Care After Childhood Cancer: A Systematic Review of Reported Barriers and Facilitators.Cancer control : journal of the Moffitt Cancer CenterPooled it
- Experiences of adult survivors of childhood cancer in a randomized cardiovascular health promotion trial: a qualitative report from the Childhood Cancer Survivor Study.Journal of cancer survivorship : research and practice · 2024Trial
- The Effect of Relaxation Techniques on Anxiety, Fatigue and Sleep Quality of Parents of Children with Leukemia under Chemotherapy in South East Iran.Asian Pacific journal of cancer prevention : APJCP · 2019Trial
- Beyond the Document: A Single-Center Qualitative Study of Survivorship Care Plan Barriers and Opportunities Across Pediatric Oncology Stakeholders.Pediatric blood & cancer · 2026Article
- Case study in VersKiK: a methodological approach for studying paediatric cancer survivors' pathways.BMC medical research methodology · 2025Article
- Childhood cancer models of survivorship care: a scoping review of elements of care and reported outcomes.Journal of cancer survivorship : research and practice · 2025Article
- Interactions among dyadic coping, self-efficacy, and negative emotions in Chinese parents of children with leukemia.BMC psychology · 2025Article
- Healthcare Communication Experiences of Hispanic Caregivers of Childhood Cancer Survivors.Healthcare (Basel, Switzerland) · 2024Article
- A software tool to support follow-up care in a French childhood cancer cohort: construction and feasibility.BMC cancer · 2024Article
- Supportive care needs of adolescents and young adults 5 years after cancer: a qualitative study.Frontiers in psychology · 2024Article
- "I don't take for granted that I am doing well today": a mixed methods study on well-being, impact of cancer, and supportive needs in long-term childhood cancer survivors.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- Reporting the whole story: Analysis of the 'out-of-scope' questions from the James Lind Alliance Teenage and Young Adult Cancer Priority Setting Partnership Survey.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- The unmet needs of childhood cancer survivors in long-term follow-up care: A qualitative study.Psycho-oncology · 2021Article
- Healthcare provider perspectives on pediatric cancer survivorship care plans: a single institution pilot study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Survivorship care plan experiences among childhood acute lymphoblastic leukemia patients and their families.BMC pediatrics · 2019Article
Corrections and comments
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Authors and funding
6 authors at 2 institutions in 1 country.
Funding
Abstract
Despite support for the provision of a survivorship care plan (SCP) to every cancer survivor, there is a lack of understanding of the needs and preferences of key stakeholders. We examined perspectives of a novel personalized SCP for childhood cancer survivors (CCS), their family, and family physicians (FP). We conducted semi-structured telephone interviews with a purposefully selected sample of CCS, parents/guardians, and FPs. Data included responses to stakeholder cancer care information needs, concerns with or gaps in communication, the perceived role of the FP in the long-term management of CCS care, utility of the SCP, preferred format, and suggestions for improvement. A deductive content analysis was conducted. Twenty-four participants including 8 CCS, 10 parents/guardians, and 6 FPs completed an interview. Four main and several sub-categories emerged. Core categories were coded as (1) informative reference, (2) coordination of follow-up, (3) barriers to follow-up care, and (4) suggestions for improvement and future implementation. The majority of participants preferred an electronic- or web-based format. Overall, the SCP was seen as an informative and concise resource. The SCP was thought to be a valuable tool to foster communication and empower CCSs to become more fully engaged in their own cancer-related health care. FPs viewed the SCP as a useful resource to facilitate and guide the long-term management of the CCS. In addition to the treatment summary, a comprehensive follow-up timeline, personalized lifestyle information, and details on how to access additional psychosocial support were highlighted as important components.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.