Evidence map›Paper›PMID 29535507›Full record

ArticlePatient preference and adherence2018

Cultural adaptation and validation of patient decision aids: a scoping review.

Vanessa Chenel, W Ben Mortenson, Manon Guay, Jeffrey William Jutai, Claudine Auger

Abstract readScoping Review
In one paragraph

Article in Patient preference and adherence, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers.

0numbers the graph read from it
0cells of the map it votes in
32citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

32 citing papers in PubMed.

  1. Trial
  2. Article
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  4. Process for Rapid Co-development of a Decision Aid Prototype for Population-wide Cancer Screening.Medical decision making : an international journal of the Society for Medical Decision Making · 2025
    Article
  5. Article
  6. Article
  7. Article
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  9. Article
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  14. Article
  15. Article
  16. Review
  17. Cultural adaptation of a community-based advance serious illness planning decision aid to the Quebec context involving end-users.Health expectations : an international journal of public participation in health care and health policy · 2022
    Article
  18. Observational
  19. Review
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Vanessa ChenelSchool of Rehabilitation, Faculty of Medicine, Université de Montréal.
W Ben MortensonDepartment of Occupational Science and Occupational Therapy, Faculty of Medicine, University of British Columbia.
Manon GuaySchool of Rehabilitation, Faculty of Medicine and Health Sciences, Université de Sherbrooke.
Jeffrey William JutaiInterdisciplinary School of Health Sciences, University of Ottawa.
Claudine AugerSchool of Rehabilitation, Faculty of Medicine, Université de Montréal.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

In order to promote self-determination, patients have to be actively involved with their care providers in health-care decision making, especially when such decisions involve personal preferences. Decision aids (DAs) are tools that can contribute to patient-centered decision-making processes. To benefit from previous fieldwork and avoid duplicating developmental efforts and producing many similar DAs, the adaptation of existing DAs to new cultural contexts is a resource-saving option. However, there are no guidelines on how to culturally adapt and validate DAs. This study aimed to identify and document existing procedures for the cultural adaptation and validation of patient DAs. A scoping review examined studies conducting cultural adaptation and/or validation of patient DAs. The following databases were searched in February 2016: CINAHL, EMBASE, Medline (Ovid), PASCAL, PsychINFO, and PubMed. From the 13 studies selected, 11 main procedures were identified: appraisal of the original DA, assessment of the new cultural context, translation, linguistic adaptation, cultural adaptation, usability testing, exploration of DA acceptability, test-retest reliability, content validity, construct validity, and criterion validity. A conceptual synthesis of these studies suggests there are four phases in the adaptation/validation process of DAs aimed at: 1) exploring the original DA and the new cultural context, 2) adapting the original DA to the new cultural context, 3) lab testing the preliminary version of the adapted DA, and 4) field testing the adapted DA in a real use context. By facilitating the adaptation and broader implementation of DAs, patients may ultimately be empowered in decision-making processes.

Indexed as

cultural adaptationdecision makingdecision support techniquestranslationvalidation studies

Identifiers

PMID29535507
PMCPMC5841325

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.