Evidence map›Paper›PMID 29516776›Full record

ArticlePalliative medicine2018

Palliative care for people with advanced liver disease: A feasibility trial of a supportive care liver nurse specialist.

Barbara Kimbell, Scott A Murray, Heidi Byrne, Andrea Baird, Peter C Hayes, Alastair MacGilchrist, Anne Finucane, Patricia Brookes Young, Ronan E O'Carroll, Christopher J Weir and 2 more

Open access · bronzeAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Palliative medicine, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
24citing papers in PubMed, 3 pooled it
5.3field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

24 citing papers in PubMed, 3 syntheses or guidelines pooled it, 55 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
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  12. Article
  13. Quality of end-of-life care with non-malignant liver disease: Analysis of the VOICES National Survey of Bereaved People.Liver international : official journal of the International Association for the Study of the Liver · 2023
    Article
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  18. Review
  19. Article
  20. Strategies to Improve Delivery of Cirrhosis Care.Current treatment options in gastroenterology · 2021
    Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 4 institutions in 1 country.

Barbara Kimbell1 Primary Palliative Care Research Group, Usher Institute of Population Health Sciences and Informatics, Edinburgh Medical School, The University of Edinburgh, Edinburgh, UK.
Scott A Murray1 Primary Palliative Care Research Group, Usher Institute of Population Health Sciences and Informatics, Edinburgh Medical School, The University of Edinburgh, Edinburgh, UK.ORCID 0000-0002-3819-2912
Heidi Byrne2 Liver Unit, Royal Infirmary of Edinburgh, Edinburgh, UK.
Andrea Baird2 Liver Unit, Royal Infirmary of Edinburgh, Edinburgh, UK.
Peter C Hayes2 Liver Unit, Royal Infirmary of Edinburgh, Edinburgh, UK.
Alastair MacGilchrist2 Liver Unit, Royal Infirmary of Edinburgh, Edinburgh, UK.
Anne Finucane3 Marie Curie Hospice Edinburgh, Edinburgh, UK.
Patricia Brookes Young4 Palliative Care Service, Royal Infirmary of Edinburgh, Edinburgh, UK.
Ronan E O'Carroll5 Division of Psychology, University of Stirling, Stirling, UK.
Christopher J Weir6 Edinburgh Clinical Trials Unit, Usher Institute of Population Health Sciences and Informatics, The University of Edinburgh, Edinburgh, UK.
Marilyn Kendall1 Primary Palliative Care Research Group, Usher Institute of Population Health Sciences and Informatics, Edinburgh Medical School, The University of Edinburgh, Edinburgh, UK.
Kirsty Boyd1 Primary Palliative Care Research Group, Usher Institute of Population Health Sciences and Informatics, Edinburgh Medical School, The University of Edinburgh, Edinburgh, UK.
Edinburgh Royal Infirmary · GBUniversity of Edinburgh · GBMarie Curie Hospice · GBUniversity of Stirling · GB

Funding

Chief Scientist Office [UK] CZH/4/1054
6 · The paper itself

Abstract

backgroundLiver disease is an increasing cause of death worldwide but palliative care is largely absent for these patients.

aimWe conducted a feasibility trial of a complex intervention delivered by a supportive care liver nurse specialist to improve care coordination, anticipatory care planning and quality of life for people with advanced liver disease and their carers.

designPatients received a 6-month intervention (alongside usual care) from a specially trained liver nurse specialist. The nurse supported patients/carers to live as well as possible with the condition and acted as a resource to facilitate care by community professionals. A mixed-method evaluation was conducted. Case note analysis and questionnaires examined resource use, care planning processes and quality-of-life outcomes over time. Interviews with patients, carers and professionals explored acceptability, effectiveness, feasibility and the intervention. SETTING/

participantsPatients with advanced liver disease who had an unplanned hospital admission with decompensated cirrhosis were recruited from an inpatient liver unit. The intervention was delivered to patients once they had returned home.

resultsWe recruited 47 patients, 27 family carers and 13 case-linked professionals. The intervention was acceptable to all participants. They welcomed access to additional expert advice, support and continuity of care. The intervention greatly increased the number of electronic summary care plans shared by primary care and hospitals. The Palliative care Outcome Scale and EuroQol-5D-5L questionnaire were suitable outcome measurement tools.

conclusionThis nurse-led intervention proved acceptable and feasible. We have refined the recruitment processes and outcome measures for a future randomised controlled trial.

Indexed as

AdultAgedAged, 80 and overFeasibility StudiesFemaleHealth Care SurveysHumansLiver DiseasesMaleMiddle AgedPalliative CarePatient Care PlanningQuality of LifeScotlandcare planningfeasibility trialgeneralist palliative careLiver failurenurse specialistpalliative caresupportive care

Identifiers

PMID29516776
PMCPMC5946657
OpenAlexW2793322928

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.