ArticleAmerican journal of medical genetics. Part C, Seminars in medical genetics2018
Engaging populations underrepresented in research through novel approaches to consent.
Article in American journal of medical genetics. Part C, Seminars in medical genetics, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed.
- Methodological opportunities in genomic data analysis to advance health equity.Nature reviews. Genetics · 2025Review
- Using technology to increase reach and optimize consent experience for a large-scale research program.Journal of clinical and translational science · 2025Article
- Equity Concerns Across Pediatric Research Recruitment: An Analysis of Research Staff Interviews.Academic pediatrics · 2024Article
- The ethical challenges of diversifying genomic data: A qualitative evidence synthesis.Cambridge prisms. Precision medicine · 2024Review
- Overcoming the exclusion of marginalized caregiver and patient groups in pediatric brain tumor research.Neuro-oncology practice · 2023Article
- Enablers and barriers to engaging under-served groups in research: Survey of the United Kingdom research professional's views.NIHR open research · 2023Article
- Public engagement with genomics.Wellcome open research · 2023Review
- Facebook recruitment for research of children and parents during the COVID-19 pandemic.Applied nursing research : ANR · 2022Article
- Practices and Attitudes toward Returning Genomic Research Results to Low-Resource Research Participants.Public health genomics · 2021Article
- Cancer Disparities and Health Equity: A Policy Statement From the American Society of Clinical Oncology.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2020Article
- A roadmap for precision medicine research recruitment: empirical assessment of the public's willingness to participate.Personalized medicine · 2020Article
- Assessing Parent Decisions About Child Participation in a Behavioral Health Intervention Study and Utility of Informed Consent Forms.JAMA network open · 2020Article
- Recruiting diversity where it exists: The Alabama Genomic Health Initiative.Journal of genetic counseling · 2020Article
- Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution.Genetics in medicine : official journal of the American College of Medical Genetics · 2020Article
- Connected Medical Technology and Cybersecurity Informed Consent: A New Paradigm.Journal of medical Internet research · 2020Article
- Understanding as an Ethical Aspiration in an Era of Digital Technology-Based Communication: An Analysis of Informed Consent Functions.The American journal of bioethics : AJOB · 2019Article
- Ethical and Legal Considerations for the Inclusion of Underserved and Underrepresented Immigrant Populations in Precision Health and Genomic Research in the United States.Ethnicity & disease · 2019Article
- Genetic counselors on the frontline of precision health.American journal of medical genetics. Part C, Seminars in medical genetics · 2018Article
- Informed Consent in Two Alzheimer's Disease Research Centers: Insights From Research Coordinators.AJOB empirical bioethicsArticle
- Article
Corrections and comments
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Authors and funding
2 authors.
Funding
Abstract
The lack of diversity of populations included in genomics databases is an important inhibitor of genomic discovery from bench to bedside. One way to increase the diversity of participants is to ensure that informed consent processes are designed for cultural and linguistic concordance for non-majority populations. This article describes two case studies of genomics research studies that are using novel approaches to informed consent to increase recruitment and retention of participants from traditionally underrepresented populations: The Cancer Health Assessments Reaching Many (CHARM) study, part of the Clinical Sequencing Evidence-Generating Research (CSER) consortium, and the All of Us Research Program, part of the Precision Medicine Initiative. We conclude by proposing a community of practice among researchers seeking to improve informed consent to increase diversity in genomics research.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.