ReviewHealth expectations : an international journal of public participation in health care and health policy2018
Consumer input into health care: Time for a new active and comprehensive model of consumer involvement.
Review in Health expectations : an international journal of public participation in health care and health policy, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
33 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A hybrid method of healthcare delivery research and human-centered design to develop technology-enabled support for caregivers of hematopoietic stem cell transplant recipients.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Pooled it
- Being 'The Only Consumer' - Exploring the Lived Experiences of Health Consumer Representatives in Australian Health System Involvement.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Consumer and Stakeholder Perspectives About the Lived Experience Advisor Programme: A Qualitative Descriptive Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Psychosocial Support for Australian Families Impacted by Craniosynostosis: A Qualitative Study.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2026Article
- Stigma reduction as quality health care: A qualitative study of structural level mechanisms to address stigma.PloS one · 2026Article
- Scaling Family Voices and Engagement to Measure and Improve Systems Performance and Whole Child Health: Progress and Lessons from the Child and Adolescent Health Measurement Initiative.Maternal and child health journal · 2025Article
- Perceptions and Experiences of Consumer Representatives on Patient Safety Investigation Teams: A Qualitative Analysis.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Using Codesign to Develop a Health Literacy Intervention to Improve the Accessibility and Acceptability of Cardiac Services: The Equal Hearts Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Returning raw genomic data to research participants in a pediatric cancer precision medicine trial.NPJ genomic medicine · 2025Article
- Examining impact of service user involvement: a follow-up study of user-led mental health service evaluation.Frontiers in psychiatry · 2025Article
- Virtual Reality Training to Reduce Workplace Violence in Healthcare.Issues in mental health nursing · 2025Article
- [Representation and representativeness in health councils: between formalization and participatory legitimacy].Cadernos de saude publica · 2025Article
- Perspectives of cancer consumer representatives on their involvement in healthcare service improvement: a qualitative study.BMC health services research · 2024Article
- A Qualitative Study Supporting Optimal Nutrition in Advanced Liver Disease-Unlocking the Potential for Improvement.Nutrients · 2024Article
- Aligning organisational priorities and implementation science for cancer research.BMC health services research · 2024Article
- Co-design and Consultation Ensure Consumer Needs Are Met: Building an eHealth Platform for Children with Inflammatory Bowel Disease.Digestive diseases and sciences · 2023Article
- Empowering Healthcare Through User Feedback: A Multidimensional Analysis of the Knowledge.Patient preference and adherence · 2023Article
- Perinatal Women's Views of Pharmacist-Delivered Perinatal Depression Screening: A Qualitative Study.International journal of environmental research and public health · 2022Article
- 'Share your views'-international consultation informs a patient engagement strategy for the Multinational Association of Supportive Care in Cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- The Experiences of Stakeholders Using Social Media as a Tool for Health Service Design and Quality Improvement: A Scoping Review.International journal of environmental research and public health · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundTo ensure the provision of patient-centred health care, it is essential that consumers are actively involved in the process of determining and implementing health-care quality improvements. However, common strategies used to involve consumers in quality improvements, such as consumer membership on committees and collection of patient feedback via surveys, are ineffective and have a number of limitations, including: limited representativeness; tokenism; a lack of reliable and valid patient feedback data; infrequent assessment of patient feedback; delays in acquiring feedback; and how collected feedback is used to drive health-care improvements.
objectivesWe propose a new active model of consumer engagement that aims to overcome these limitations. This model involves the following: (i) the development of a new measure of consumer perceptions; (ii) low cost and frequent electronic data collection of patient views of quality improvements; (iii) efficient feedback to the health-care decision makers; and (iv) active involvement of consumers that fosters power to influence health system changes.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.