ArticleCMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne2018
Outcomes, experiences and palliative care in major stroke: a multicentre, mixed-method, longitudinal study.
Article in CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 2 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
23 citing papers in PubMed, 2 syntheses or guidelines pooled it, 69 citations in OpenAlex.
- Shared Decision-Making for Patients with Stroke in Neurocritical Care: A Qualitative Meta-Synthesis.Neurocritical care · 2025Pooled it
- Information provision for stroke survivors and their carers.The Cochrane database of systematic reviews · 2021Pooled it
- Palliative care beyond traditional boundaries: A nationwide survey of bereavement support in the form of conversations and Palliative Care Registry utilization at Swedish stroke units.Palliative care and social practice · 2026Article
- Advance care planning among stroke patients: A scoping review.International journal of nursing sciences · 2025Review
- Use of End-of-Life Care Pathways in Hospitalized Stroke Patients: A Retrospective Study of the AMBER Care and Dying Adults in the Last Days of Life Approaches.Healthcare (Basel, Switzerland) · 2025Article
- Unaddressed palliative care needs of ischemic stroke patients treated with reperfusion therapies after age 80.BMC palliative care · 2025Article
- Prepare: Improving End-of-Life Care Practice in Stroke Care: Insights from a National Survey and Semi-Structured Interviews.Healthcare (Basel, Switzerland) · 2025Article
- Integration of Palliative Care into Primary Care: A Collaborative Effort Between the Indian Association of Palliative Care and the Indian Association of Preventive and Social Medicine.Indian journal of community medicine : official publication of Indian Association of Preventive & Social Medicine · 2024Article
- Transition to end-of-life care in patients with neurological diseases in an acute hospital ward.BMC neurology · 2024Article
- Palliative care needs of Jordanian women's experience of living with stroke: a descriptive phenomenological study.BMC palliative care · 2023Article
- Addressing inequity in palliative care provision for older people living with multimorbidity. Perspectives of community-dwelling older people on their palliative care needs: A scoping review.Palliative medicine · 2023Article
- Factors influencing adult carer support planning for unpaid caregiving at the end of life in Scotland: Qualitative insights from triangulated interviews and focus groups.Health & social care in the community · 2022Article
- Core Outcome Measures for Palliative and End-of-Life Research After Severe Stroke: Mixed-Method Delphi Study.Stroke · 2021Article
- Palliative care after stroke: A review.International journal of stroke : official journal of the International Stroke Society · 2021Review
- Involvement of Specialist Palliative Care in a Stroke Unit in Austria-Challenges for Families and Stroke Teams.Frontiers in neurology · 2021Article
- The considerations, experiences and support needs of family members making treatment decisions for patients admitted with major stroke: a qualitative study.BMC medical informatics and decision making · 2020Article
- Tracheostomy After Severe Acute Brain Injury: Trends and Variability in the USA.Neurocritical care · 2019Article
- Planning After Stroke Survival: Advance Care Planning in the Stroke Clinic.Journal of the American Heart Association · 2019Article
- Palliative Care for Stroke Patients and Their Families: Barriers for Implementation.Frontiers in neurology · 2019Review
- Neuropalliative Care: A Practical Guide for the Neurologist.Seminars in neurology · 2018Review
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Authors and funding
8 authors at 4 institutions in 1 country.
Funding
Abstract
backgroundCase fatality after total anterior circulation stroke is high. Our objective was to describe the experiences and needs of patients and caregivers, and to explore whether, and how, palliative care should be integrated into stroke care.
methodsFrom 3 stroke services in Scotland, we recruited a purposive sample of people with total anterior circulation stroke, and conducted serial, qualitative interviews with them and their informal and professional caregivers at 6 weeks, 6 months and 1 year. Interviews were transcribed for thematic and narrative analysis. The Palliative Care Outcome Scale, EuroQol-5D-5L and Caregiver Strain Index questionnaires were completed after interviews. We also conducted a data linkage study of all patients with anterior circulation stroke admitted to the 3 services over 6 months, which included case fatality, place of death and readmissions.
resultsData linkage (
interpretationMajor stroke brings likelihood of death but little preparation. Realistic planning with patients and informal caregivers should be offered, raising the possibility of death or survival with disability. Practising the principles of palliative care is needed, but the term "palliative care" should be avoided or reframed.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.