ArticleInformatics for health & social care2019
Information, communication, and online tool needs of Hispanic family caregivers of individuals with Alzheimer's disease and related dementias.
Article in Informatics for health & social care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
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Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Generative Participatory Design Methodology to Develop Electronic Health Interventions: Systematic Literature Review.Journal of medical Internet research · 2020Pooled it
- Dilemma of self-management among patients with diabetes in primary care settings in China: a qualitative study.BMJ open · 2026Article
- Addressing Digital Disparities in Alzheimer Disease by Improving Access to Alzheimer Resources for Spanish-Speaking Latino or Latina Individuals in Los Angeles County: Mixed Methods Study.Journal of medical Internet research · 2025Article
- Equitable formal care access: examining processes for Hispanic/Latino family dementia caregivers' decision-making.The Gerontologist · 2025Article
- Resigned but Resilient: Caregiver Perceptions of Role Ambiguity and Quality of Care During Hospital-to-Home Transitions of Older Latinos Living With Dementia.Journal of aging and health · 2025Article
- Designing and Evaluating IT Applications for Informal Caregivers: Scoping Review.Journal of medical Internet research · 2024Article
- Experiences managing behavioral symptoms among Latino caregivers of Latino older adults with dementia and memory problems: a qualitative study.BMC geriatrics · 2024Article
- Caregiver Burdens, Health Risks, Coping and Interventions among Caregivers of Dementia Patients: A Review of the Literature.Internal medicine (Tokyo, Japan) · 2023Review
- Health Information-Seeking Behavior of Latino Caregivers of People Living with Dementia: A Mixed-Methods Study.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2023Article
- Recruiting Socially Disconnected Latinos Caring for a Person with Alzheimer's Disease and Related Dementias During the COVID-19 Pandemic: Lessons Learned.Clinical gerontologist · 2023Article
- Scalar Assessment of the Family Caregiver Activation in Transitions Tool: An Exploratory Factor Analysis.Journal of gerontological nursing · 2022Article
- Technology Acceptance of a Mobile Application to Support Family Caregivers in a Long-Term Care Facility.Applied clinical informatics · 2022Article
- Article
- Use of dementia and caregiving-related internet resources by informal caregivers: A cross-sectional study.Frontiers in medicine · 2022Article
- Using a GPS Watch to Characterize Life-Space Mobility in Dementia: A Dyadic Case Study.Journal of gerontological nursing · 2021Article
- "My backpack is so heavy": Experiences of Latino caregivers of family with early-onset Alzheimer's.Journal of the American Geriatrics Society · 2021Article
- Information needs and information seeking behaviour of people with dementia and their non-professional caregivers: a scoping review.BMC geriatrics · 2020Article
- A semi-automated approach for analyzing collages to inform the design of a family health information management system for Hispanic dementia caregivers.Journal of biomedical informatics · 2019Article
- Protocol for the Development of a Behavioral Family Lifestyle Intervention Supported by Mobile Health to Improve Weight Self-Management in Children With Asthma and Obesity.JMIR research protocols · 2019Article
- The effects of information and communication technologies on informal caregivers of persons living with dementia: A systematic review.Alzheimer's & dementia (New York, N. Y.) · 2019Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
purposeTo identify the information and communication needs of Hispanic family caregivers for individuals with Alzheimer's Disease and Related Dementias (ADRD) and the manner in which online tools may meet those needs.
methodsWe conducted 11 participatory design sessions with 10 English- and 14 Spanish-speaking urban-dwelling Hispanic family caregivers and gathered data using a survey, collage assemblage, and audio and video recordings. Four investigators analyzed transcripts of audio recordings with a coding framework informed by several conceptual models.
resultsParticipants had an average age of 59.7 years, were mostly female (79.2%), and had cared for a family member with ADRD for an average of 6.5 years. All participants accessed the Internet at least once a week with 75% ≥ daily. Most used the Internet to look up health information. All participants reported caregiver attributes including awareness of the disease symptoms or behaviors. The majority reported information needs/tasks (91.7%), communication needs/tasks (87.5%), and need for online tools (79.2%).
conclusionHispanic caregivers of individuals with ADRD reported key information and communication needs/tasks. Only Spanish-speaking participants reported Internet and technology use deficits suggesting the requirement for further technology support. Data show a need for online tools to meet the needs of caregivers.
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