Evidence map›Paper›PMID 29500581›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2018

Attitudes and experiences of childhood cancer survivors transitioning from pediatric care to adult care.

Beeshman S Nandakumar, Joanna E Fardell, Claire E Wakefield, Christina Signorelli, Jordana K McLoone, Jane Skeen, Ann M Maguire, Richard J Cohn, ANZCHOG Survivorship Study Group

Open access · greenAbstract read
PubMed Publisher
In one paragraph

Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 4 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
19citing papers in PubMed, 4 pooled it
6.5field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

19 citing papers in PubMed, 4 syntheses or guidelines pooled it, 38 citations in OpenAlex.

  1. Transitioning to adolescent and young adult or adult cancer survivorship care: A systematic review of contemporary guidelines and trials.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
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  14. Identifying and exploring the self-management strategies used by childhood cancer survivors.Journal of cancer survivorship : research and practice · 2021
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 2 institutions in 2 countries.

Beeshman S NandakumarDiscipline of Pediatrics, School of Women's and Children's Health, UNSW Sydney, Sydney, NSW, Australia.
Joanna E FardellDiscipline of Pediatrics, School of Women's and Children's Health, UNSW Sydney, Sydney, NSW, Australia. j.fardell@unsw.edu.au.
Claire E WakefieldDiscipline of Pediatrics, School of Women's and Children's Health, UNSW Sydney, Sydney, NSW, Australia.
Christina SignorelliDiscipline of Pediatrics, School of Women's and Children's Health, UNSW Sydney, Sydney, NSW, Australia.
Jordana K McLooneDiscipline of Pediatrics, School of Women's and Children's Health, UNSW Sydney, Sydney, NSW, Australia.
Jane SkeenStarship Blood and Cancer Centre, Starship Children's Hospital, Auckland, 1124, New Zealand.
Ann M MaguireDiscipline of Child and Adolescent Health, The University of Sydney, Sydney, New South Wales, Australia.
Richard J CohnDiscipline of Pediatrics, School of Women's and Children's Health, UNSW Sydney, Sydney, NSW, Australia.
ANZCHOG Survivorship Study Group
UNSW Sydney · AUThe University of Sydney · AU

Funding

Cancer Council NSW PG16-02National Health and Medical Research Council APP1067501
6 · The paper itself

Abstract

purposeSurvivors of pediatric cancer are prone to late effects which require ongoing medical care. Young adult survivors often transition from specialist pediatric care to adult-oriented or community-based healthcare. This study aims to describe the attitudes and experiences of survivors and their parents towards transition barriers and enablers.

methodsLong-term survivors and parents (of survivors < 16 years) were recruited from 11 hospitals in Australia and New Zealand to participate in a semi-structured telephone interview regarding their transition experiences. Transcribed interviews were coded and content analysis was used to number participants within themes.

resultsThirty-three participants were interviewed, of which 18 were survivors (mean age 26 years, SD = 6.3; mean time since treatment completion 13.3 years, SD = 6.1) and 15 were parents (mean survivor age 15 years, SD = 1.9; mean time since treatment completion 8.4 years, SD = 2.8). Participants described their transition attitudes as positive (55%), neutral (15%), or negative (30%). Key barriers to transition included dependence on pediatric healthcare providers, less confidence in primary care physicians (PCPs), inadequate communication, and cognitive difficulty. Enablers included confidence in and proximity to physicians, good communication, information, independence, and age.

conclusionsMany survivors face barriers to their transition out of pediatric care. Early introduction to transition, greater collaboration between healthcare professionals, and better information provision to survivors may improve the transition process. Future research of survivors' experience of barriers/enablers to transition is needed. Development of interventions, such as those that address self-management skills, is required to facilitate transition and encourage long-term engagement.

Indexed as

AdolescentAdultAttitudeCancer SurvivorsDelivery of Health CareFemaleHumansMaleNeoplasmsYoung AdultCognitionLong-term follow-upOncologyPediatricsSurvivorshipTransition

Identifiers

PMID29500581
OpenAlexW2792929582

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.