ArticleClinical rheumatology2018
Assessing information needs and use of online resources for disease self-management in patients with rheumatoid arthritis: a qualitative study.
Article in Clinical rheumatology, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 53 citations in OpenAlex.
- A randomized controlled trial evaluating the effects of social networking on chronic disease management in rheumatoid arthritis.Seminars in arthritis and rheumatism · 2022Trial
- Online peer support in rheumatology: a mixed methods exploration of patient and clinician views and experiences.Rheumatology (Oxford, England) · 2026Article
- Experiences of rheumatoid arthritis patients with digital health technologies in self-management: a qualitative study.Rheumatology international · 2026Article
- Exploring the self-care experiences of patients with rheumatoid arthritis through qualitative content analysis.Scientific reports · 2025Article
- Experiences With Complementary and Integrative Health Among People With Rheumatoid Arthritis and Systemic Lupus Erythematosus: A Qualitative Study.The Journal of rheumatology · 2025Article
- Online physical activity resources for individuals with rheumatoid arthritis: an environmental scan and quality appraisal.BMJ open · 2025Review
- Peer Support in Rheumatic Diseases: A Narrative Literature Review.Patient preference and adherence · 2023Review
- The Internet Knows More Than My Physician: Qualitative Interview Study of People With Rare Diseases and How They Use Online Support Groups.Journal of medical Internet research · 2022Article
- Exploring the Use of a Facebook-Based Support Group for Caregivers of Children and Youth With Complex Care Needs: Qualitative Descriptive Study.JMIR pediatrics and parenting · 2022Article
- Self-Management of Rheumatoid Arthritis: Mobile Applications.Current rheumatology reports · 2020Review
- Challenges to optimal rheumatology care: a patient-centered focus group study.Clinical rheumatology · 2020Article
- Needs, Experiences, and Views of People With Rheumatic and Musculoskeletal Diseases on Self-Management Mobile Health Apps: Mixed Methods Study.JMIR mHealth and uHealth · 2020Article
- Real-world questions and concerns about disease-modifying antirheumatic drugs (DMARDs): a retrospective analysis of questions to a medicine call center.BMC rheumatology · 2020Article
- What does digitalization hold for the creation of real-world evidence?Rheumatology (Oxford, England) · 2020Review
- "r/Thritis", Pregnancy, and Parenting: A Qualitative Descriptive Study of Reddit Forums to Explore Information Needs and Concerns of Women With Rheumatoid Arthritis.ACR open rheumatology · 2019Article
- Rheumatoid arthritis in the indigenous qom population of Rosario, Argentina: aggressive and disabling disease with inadequate adherence to treatment in a community-based cohort study.Clinical rheumatology · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 4 institutions in 1 country.
Funding
Abstract
To explore the information needs of patients with rheumatoid arthritis (RA) and their acceptance of online resources and Facebook in particular, as a source of information, interaction, and support among peers. Participants were adults with RA of ≤ 10 years duration, had ongoing or prior treatment with disease-modifying anti-rheumatic drugs or biologic agents, and internet access. We conducted 20 in-depth interviews using semi-structured interview guide to explore: (1) RA information needs, (2) use of self-management health behaviors, (3) use of internet resources for disease management, (4) role of peer support in health self-management, and (5) use of social networking sites (SNS) such as Facebook in disease management. Data were analyzed using content analysis and constant comparative methods. Participants were mainly female (85%), White (70%), and over 50 years old (70%). Specific information needs included knowledge regarding medications, disease course, pain control, diet, and exercise. Most participants had a narrow perception of SNS as a tool for disease management. However, they found SNS acceptable and were open to participating in a support group on Facebook with reasonable assurance of privacy. Although the overarching theme was RA information needs, the other themes contribute in supporting the robust emergence of Internet media in informing patients about their health and support systems. Our findings can inform the choice and format of materials to be considered for online education on self-management and social networking for RA patients.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.