ArticleBMJ open2018
Use of the nominal group technique to identify stakeholder priorities and inform survey development: an example with informal caregivers of people with scleroderma.
Article in BMJ open, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it, 37 citations in OpenAlex.
- Involving patients and caregivers to develop items for a new patient-reported experience measure for older adults attending the emergency department. Findings from a nominal group technique study.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- Identifying Features of Scanxiety Among People With Cancer: A Nominal Group Technique Method.Psycho-oncology · 2026Article
- Development of a tool to map SSc pain sources, characteristics and management experiences: the SPIN Pain Assessment Tool.Rheumatology (Oxford, England) · 2026Article
- Methodological reflections to support good practice in using nominal group techniques: Insights from applications in palliative care studies.Palliative medicine · 2025Article
- Addressing psychosocial vulnerability in rare diseases: a call to action from a European expert consensus study.Orphanet journal of rare diseases · 2025Article
- Patient perspectives on knowledge gaps in hypersensitivity pneumonitis.BMJ open respiratory research · 2024Article
- Exploring Health Research Priority Setting in a South African Province: A Nominal Group Technique Approach.International journal of environmental research and public health · 2024Article
- Protocol for the development of a tool to map systemic sclerosis pain sources, patterns, and management experiences: a Scleroderma Patient-centered Intervention Network patient-researcher partnership.BMC rheumatology · 2024Article
- Implementation of medication reviews in community pharmacy: reaching consensus on stakeholders' recommendations for mechanisms of change using the nominal group technique.International journal of clinical pharmacy · 2024Article
- The Support Priorities of Older Carers of People Living with Dementia: A Nominal Group Technique Study.Healthcare (Basel, Switzerland) · 2023Article
- Cardiovascular health research priorities in the United Arab Emirates.Frontiers in public health · 2023Article
- Engaging youth in stakeholder analysis for developing community-based digital innovations for mental health of young people in Ingwavuma community, in KwaZulu-Natal Province, South Africa.Health & social care in the community · 2022Article
- Development, usability and quality evaluation of the resilient mobile application for women with breast cancer.Health science reports · 2022Article
- Nutrition Information Resources Used by People With Systemic Sclerosis and Perceived Advantages and Disadvantages: A Nominal Group Technique Study.ACR open rheumatology · 2021Article
- Supporting GPs around euthanasia requests from people with dementia: a qualitative analysis of Dutch nominal group meetings.The British journal of general practice : the journal of the Royal College of General Practitioners · 2020Article
- Article
- Creating a locally driven research agenda for the ethnic minorities of Eastern Myanmar.Health research policy and systems · 2019Article
- Design, Implementation, and Evaluation of a Distance Learning Framework to Adapt to the Changing Landscape of Anatomy Instruction in Medical Education During COVID-19 Pandemic: A Proof-of-Concept Study.Frontiers in public healthArticle
- Using Nominal Group Technique to Identify Key Attributes of Oncology Treatments for a Discrete Choice Experiment.MDM policy & practiceArticle
- mHealth App to improve medication adherence among older adult stroke survivors: Development and usability study.Digital healthArticle
Corrections and comments
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Authors and funding
8 authors at 4 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesThe nominal group technique (NGT) allows stakeholders to directly generate items for needs assessment surveys. The objective was to demonstrate the use of NGT discussions to develop survey items on (1) challenges experienced by informal caregivers of people living with systemic sclerosis (SSc) and (2) preferences for support services.
designThree NGT groups were conducted. In each group, participants generated lists of challenges and preferred formats for support services. Participants shared items, and a master list was compiled, then reviewed by participants to remove or merge overlapping items. Once a final list of items was generated, participants independently rated challenges on a scale from 1 (not at all important) to 10 (extremely important) and support services on a scale from 1 (not at all likely to use) to 10 (very likely to use). Lists generated in the NGT discussions were subsequently reviewed and integrated into a single list by research team members.
settingSSc patient conferences held in the USA and Canada.
participantsInformal caregivers who previously or currently were providing care for a family member or friend with SSc.
resultsA total of six men and seven women participated in the NGT discussions. Mean age was 59.8 years (SD=12.6). Participants provided care for a partner (n=8), parent (n=1), child (n=2) or friend (n=2). A list of 61 unique challenges was generated with challenges related to gaps in information, resources and support needs identified most frequently. A list of 18 unique support services was generated; most involved online or in-person delivery of emotional support and educational material about SSc.
conclusionsThe NGT was an efficient method for obtaining survey items directly from SSc caregivers on important challenges and preferences for support services.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.