Evidence map›Paper›PMID 29495384›Full record

ReviewChildren (Basel, Switzerland)2018

Emerging Methodologies in Pediatric Palliative Care Research: Six Case Studies.

Katherine E Nelson, James A Feinstein, Cynthia A Gerhardt, Abby R Rosenberg, Kimberley Widger, Jennifer A Faerber, Chris Feudtner

Open access · goldAbstract readReview
In one paragraph

Review in Children (Basel, Switzerland), 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
1.8field-weighted citation impact, top 14% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 14 citations in OpenAlex.

  1. Article
  2. Article
  3. Article
  4. Pediatric Oncology Hospice: A Comprehensive Review.The American journal of hospice & palliative care · 2024
    Review
  5. Article
  6. Article
  7. Article
  8. COMPLEXITY OF PEDIATRIC CHRONIC DISEASE: CROSS-SECTIONAL STUDY WITH 16,237 PATIENTS FOLLOWED BY MULTIPLE MEDICAL SPECIALTIES.Revista paulista de pediatria : orgao oficial da Sociedade de Pediatria de Sao Paulo · 2020
    Article
  9. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 5 institutions in 2 countries.

Katherine E NelsonPediatric Advanced Care Team, Department of Paediatrics, Hospital for Sick Children, Toronto, ON M5G 1X8, Canada. katherine.nelson@sickkids.ca.
James A FeinsteinAdult and Child Consortium for Health Outcomes Research and Delivery Science, Children's Hospital Colorado, Aurora, CO 80045, USA. james.feinstein@ucdenver.edu.ORCID 0000-0003-3074-8805
Cynthia A GerhardtCenter for Biobehavioral Health, The Research Institute at Nationwide Children's Hospital, Columbus, OH 43205, USA. cynthia.gerhardt@nationwidechildrens.org.
Abby R RosenbergDepartment of Pediatrics, University of Washington School of Medicine; Cancer and Blood Disorders Center, Seattle Children's Hospital, Seattle, WA 98105, USA. abby.rosenberg@seattlechildrens.org.
Kimberley WidgerPediatric Advanced Care Team, Department of Paediatrics, Hospital for Sick Children, Toronto, ON M5G 1X8, Canada. kim.widger@utoronto.ca.
Jennifer A FaerberDepartment of Pediatrics, The Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA. faerberj@email.chop.edu.
Chris FeudtnerPediatric Advanced Care Team, The Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA. feudtner@email.chop.edu.
Children's Hospital of Philadelphia · USUniversity of Toronto · CAChildren's Hospital Colorado · USNationwide Children's Hospital · USSeattle Children's Hospital · US

Funding

Enhancing Medication Safety in Children with Polypharmacy Using Parent-Reported Symptom AssessmentsK23HD091295 · NICHD · UNIVERSITY OF COLORADO DENVER · PI FEINSTEIN, JAMES A · 2017 to 2021
$826k
NICHD NIH HHS K23 HD091295
6 · The paper itself

Abstract

Given the broad focus of pediatric palliative care (PPC) on the physical, emotional, and spiritual needs of children with potentially life-limiting illnesses and their families, PPC research requires creative methodological approaches. This manuscript, written by experienced PPC researchers, describes issues encountered in our own areas of research and the novel methods we have identified to target them. Specifically, we discuss potential approaches to: assessing symptoms among nonverbal children, evaluating medical interventions, identifying and treating problems related to polypharmacy, addressing missing data in longitudinal studies, evaluating longer-term efficacy of PPC interventions, and monitoring for inequities in PPC service delivery.

Indexed as

outcomespediatric palliative careresearch methods

Identifiers

PMID29495384
PMCPMC5867491
OpenAlexW2790155956

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.