ArticleJournal of racial and ethnic health disparities2018
Conspiracy Beliefs Are Not Necessarily a Barrier to Engagement in HIV Care Among Urban, Low-Income People of Color Living with HIV.
Article in Journal of racial and ethnic health disparities, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Ubiquitous Yet Unclear: A Systematic Review of Medical Mistrust.Behavioral medicine (Washington, D.C.)Pooled it
- Sharing Patient-Generated Health Data: The Role of Healthcare Quality, Mistrust, and Discrimination Across Race-Gender Identities.Journal of racial and ethnic health disparities · 2026Article
- PrEP-Related Medical, Structural and Institutional Mistrust among a Socioeconomically Diverse Sample of Black, Latine, Asian, and White Young Sexual Minority Men: Lived Experiences of Intersectional Inequity.AIDS and behavior · 2026Article
- Characteristics of healthcare providers, healthcare systems, and patient strategies related to medical mistrust among black and African Americans.BMC primary care · 2025Article
- Assessing and attenuating the impact of selection bias on spatial cluster detection studies.Spatial and spatio-temporal epidemiology · 2024Article
- COVID-19 Conspiracy Beliefs are not Barriers to HIV Status Neutral Care Among Black Cisgender Sexual Minority Men and Black Transgender Women at the Initial Peak of the COVID-19 Pandemic in Chicago, USA.AIDS and behavior · 2022Article
- Factors Influencing Successful Recruitment of Racial and Ethnic Minority Patients for an Observational HIV Cohort Study in Washington, DC.Journal of racial and ethnic health disparities · 2022Observational
- Correlates of Medical Mistrust Among Minority Women at Risk for HIV and Their Networks.Health education & behavior : the official publication of the Society for Public Health Education · 2021Article
- A shot at equity? Addressing disparities among Black MSM in the coming era of long-acting injectable preexposure prophylaxis.AIDS (London, England) · 2019Article
- HIV-related 'conspiracy beliefs': lived experiences of racism and socio-economic exclusion among people living with HIV in New York City.Culture, health & sexuality · 2019Article
- Towards a More Inclusive and Dynamic Understanding of Medical Mistrust Informed by Science.Behavioral medicine (Washington, D.C.)Review
- Whose Responsibility Is It to Dismantle Medical Mistrust? Future Directions for Researchers and Health Care Providers.Behavioral medicine (Washington, D.C.)Article
- Medical Mistrust and PrEP Perceptions Among Transgender Women: A Cluster Analysis.Behavioral medicine (Washington, D.C.)Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
backgroundHIV-related "conspiracy beliefs" include ideas about the genocidal origin of HIV to target minority people, and the notion that a cure for HIV is being deliberately withheld. Previous literature suggests that these beliefs may negatively affect engagement in HIV care and ART adherence, but little is known about how people who are disengaged from care may think about these ideas.
methodsTwenty-seven semi-structured interviews were conducted with low-income Black and Latinx people living with HIV in NYC who were currently disengaged from, or recently re-engaged in, HIV care.
findingsThe data suggest that HIV-related "conspiracy beliefs" are not necessarily a barrier to care. Regardless of whether or not people endorsed these ideas, participants were largely dismissive, and prioritized focusing on managing their HIV and overall health and life challenges. RECOMMENDATIONS: Interventions aiming to improve ART adherence and retention in HIV care should focus on building trust between clinicians and populations that have experienced historical, as well as ongoing, marginalization. HIV care providers should ask patients open-ended questions specifically about their beliefs about HIV and ART in order to address potential suspicion. Moving away from the phrase "conspiracy beliefs" in favor of more neutral language, such as "HIV-related beliefs," can enable us to better understand these ideas in the context of people's daily lives.
conclusionsFurther research is needed to better understand how structural inequality may shape how people experience mistrust, and how mistrust may factor into the constellation of barriers to consistent engagement in HIV care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.