ArticleJMIR human factors2018
Co-Designing a Collaborative Chronic Care Network (C3N) for Inflammatory Bowel Disease: Development of Methods.
Article in JMIR human factors, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Exploring co-design: a systematic review of concepts, processes, models, and frameworks used in public health research.Journal of public health (Oxford, England) · 2025Pooled it
- The Many Faces of Engagement: A Scoping Review of Paediatric Patient and Family Engagement in Clinical Care, Education and Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- End User Needs and Perspectives for a Digital Opioid Safety Tool in Adolescents and Young Adults With Inflammatory Bowel Disease: A Qualitative Human-Centered Design Study.JMIR formative research · 2026Article
- Learning about learning health systems: Strengthening theory through continuous evaluation and improvement.Learning health systems · 2025Article
- Charting progress in learning health systems: A systematic review of 5 years of definitions, models, and frameworks.Learning health systems · 2025Article
- The role of patients, caregivers, and communities in Learning Health Systems: a narrative review.Frontiers in health services · 2025Review
- Building a regional pediatric asthma learning health system in support of optimal, equitable outcomes.Learning health systems · 2024Article
- Implementation model for a national learning health system (IMPLEMENT-National LHS): a concept analysis and systematic review protocol.BMJ open · 2023Article
- How do we improve the translation of new evidence into the practice of hematopoietic cell transplantation and cellular therapy?Blood reviews · 2023Review
- Building Culturally Centered System Dynamics Logic Models for the Brown Buttabean Motivation Organization: Protocol for a Systems Science Approach.JMIR research protocols · 2023Article
- Development and implementation experience of a learning healthcare system for facility based newborn care in low resource settings: The Neotree.Learning health systems · 2023Article
- The role of co-production in Learning Health Systems.International journal for quality in health care : journal of the International Society for Quality in Health Care · 2021Review
- Getting what is needed, when it's needed: Sharing information, knowledge, and know-how in a Collaborative Learning Health System.Learning health systems · 2021Article
- Measuring engagement in a collaborative learning health system: The case of ImproveCareNow.Learning health systems · 2021Article
- Sharing Patient-Controlled Real-World Data Through the Application of the Theory of Commons: Action Research Case Study.Journal of medical Internet research · 2021Article
- Toward a Conversational Agent to Support the Self-Management of Adults and Young Adults With Sickle Cell Disease: Usability and Usefulness Study.Frontiers in digital health · 2021Article
- Article
- Addressing the Impact of the Coronavirus Disease 2019 (COVID-19) Pandemic on Hematopoietic Cell Transplantation: Learning Networks as a Means for Sharing Best Practices.Biology of blood and marrow transplantation : journal of the American Society for Blood and Marrow Transplantation · 2020Review
- Article
- Designing a Multistakeholder Collaboration to Improve Preventive Care for Children With Sickle Cell Anemia.Journal of pediatric hematology/oncology · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
backgroundOur health care system fails to deliver necessary results, and incremental system improvements will not deliver needed change. Learning health systems (LHSs) are seen as a means to accelerate outcomes, improve care delivery, and further clinical research; yet, few such systems exist. We describe the process of codesigning, with all relevant stakeholders, an approach for creating a collaborative chronic care network (C3N), a peer-produced networked LHS.
objectiveThe objective of this study was to report the methods used, with a diverse group of stakeholders, to translate the idea of a C3N to a set of actionable next steps.
methodsThe setting was ImproveCareNow, an improvement network for pediatric inflammatory bowel disease. In collaboration with patients and families, clinicians, researchers, social scientists, technologists, and designers, C3N leaders used a modified idealized design process to develop a design for a C3N.
resultsOver 100 people participated in the design process that resulted in (1) an overall concept design for the ImproveCareNow C3N, (2) a logic model for bringing about this system, and (3) 13 potential innovations likely to increase awareness and agency, make it easier to collect and share information, and to enhance collaboration that could be tested collectively to bring about the C3N.
conclusionsWe demonstrate methods that resulted in a design that has the potential to transform the chronic care system into an LHS.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.