Evidence map›Paper›PMID 29467036›Full record

ArticleBMC psychology2018

The living dead? Perception of persons in the unresponsive wakefulness syndrome in Germany compared to the USA.

Inga Steppacher, Johanna Kissler

Abstract readComparative Study
In one paragraph

Article in BMC psychology, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

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3 · Its place in the literature

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4 · The record

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5 · Who and what money

Authors and funding

2 authors.

Inga SteppacherDepartment of Psychology, University of Bielefeld, Universitätsstr. 25, 33615, Bielefeld, Germany. Inga.Steppacher@Uni-Bielefeld.de.ORCID http://orcid.org/0000-0001-5439-4840
Johanna KisslerDepartment of Psychology, University of Bielefeld, Universitätsstr. 25, 33615, Bielefeld, Germany.

Funding

Bundesministerium für Bildung und Forschung 16SV7789K
6 · The paper itself

Abstract

backgroundThe extent to which people ascribe mind to others has been shown to predict the extent to which human rights are conferred. Therefore, in the context of disorders of consciousness (DOC), mind ascription can influence end of life decisions. A previous US-American study indicated that participants ascribed even less mind to patients with unresponsive-wakefulness-syndrome (UWS) than to the dead. Results were explained in terms of implicit dualism and religious beliefs, as highly religious people ascribed least mind to UWS. Here, we addresses mind ascription to UWS patients in Germany.

methodsWe investigate the perception of UWS patients in a large German sample (N = 910) and compare the results to the previous US data, addressing possible cultural differences. We further assess effects of medical expertise, age, gender, socio-economic status and subjective knowledge about UWS in the German sample.

resultsUnlike the US sample, German participants did not perceive UWS patients as "more dead than dead", ascribing either equal (on 3 of 5 items) or more (on 2 items) mental abilities to UWS patients than to the dead. Likewise, an effect of implicit dualism was not replicated and German medically trained participants ascribed more capabilities to UWS patients than did a non-medical sample. Within the German sample, age, gender, religiosity and socio-economic status explained about 15% of the variability of mind ascription. Age and religiosity were individually significant predictors, younger and more religious people ascribing more mind. Gender had no effect.

conclusionResults are consistent with cross-cultural differences in the perception of UWS between Germany and the USA, Germans ascribing more mind to UWS patients. The German sample ascribed as much or more but not less mind to a UWS patient than to a deceased, although within group variance was large, calling for further research. Mind ascription is vital, because, in times of declining resources for healthcare systems, and an increasing legalization of euthanasia, public opinion will influence UWS patients' rights and whether 'the right to die' will be the only right conceded to them.

Indexed as

PerceptionAdolescentAdultAgedAged, 80 and overFemaleGermanyHumansMaleMiddle AgedPersistent Vegetative StateSyndromeUnited StatesWakefulnessYoung AdultDisorders of consciousnessDualismEnd of life decisionsMind perceptionMorality

Identifiers

PMID29467036
PMCPMC5822482

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.