ArticleJournal of autism and developmental disorders2018
Family Experiences with the Diagnosis of Autism Spectrum Disorder: System Barriers and Facilitators of Efficient Diagnosis.
Article in Journal of autism and developmental disorders, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
28 citing papers in PubMed, 59 citations in OpenAlex.
- Evaluation of the Diagnostic Stability of the Early Autism Spectrum Disorder Phenotype in the General Population Starting at 12 Months.JAMA pediatrics · 2019Trial
- Bridging the Gap: Barriers to Access Autism Support for Immigrant and Refugee Communities in Canada and the United States.Journal of transcultural nursing : official journal of the Transcultural Nursing Society · 2026Article
- Community views on the assessment and diagnosis of autism: Principles to guide clinical practice.Autism : the international journal of research and practice · 2026Article
- The Influence of Policy on Early Diagnosis and Other Autism Services: A Narrative Review.Review journal of autism and developmental disorders · 2025Article
- "No one was coming to save us": an interpretative phenomenological analysis exploring the experience of parents supporting their autistic daughter through anorexia nervosa.Journal of eating disorders · 2025Article
- Families' and clinicians' experiences with telehealth assessments for autism: A mixed-methods systematic review.PLOS digital health · 2025Article
- Understanding Autism as a Condition in Mental Health Clinical Practice: Clinical Perspectives from a Youth Early Psychosis Service.Community mental health journal · 2025Article
- Atypical early neural responses to native and non-native language in infants at high likelihood for developing autism.Molecular autism · 2025Article
- Atypical Neural Responses to Native and Non-Native Language in Infants at High Likelihood for Developing Autism.Research square · 2024Article
- Racial and Practical Barriers to Diagnostic and Treatment Services for Black Families of Autistic Youth: A Mixed-Method Exploration.Journal of autism and developmental disorders · 2024Article
- Diagnostic error in mental health: a review.BMJ quality & safety · 2024Review
- Medical Complexity of Children with Special Healthcare Needs and Healthcare Experiences.Children (Basel, Switzerland) · 2024Article
- Accuracy of initial diagnostic impressions of autism in toddlers and behaviors that inform these impressions.Autism research : official journal of the International Society for Autism Research · 2024Article
- Age at diagnosis and diagnostic delay across attention-deficit hyperactivity and autism spectrums.The Australian and New Zealand journal of psychiatry · 2024Article
- Obtaining a First Diagnosis of Autism Spectrum Disorder: Descriptions of the Diagnostic Process and Correlates of Parent Satisfaction from a National Sample.Journal of autism and developmental disorders · 2023Article
- Why are only some children with autism spectrum disorder misclassified by the social communication questionnaire? An empirical investigation of individual differences in sensitivity and specificity in a clinic-referred sample.Journal of neurodevelopmental disorders · 2023Article
- Diagnostic Accuracy of Primary Care Clinicians Across a Statewide System of Autism Evaluation.Pediatrics · 2023Article
- Primary Care Clinician and Child Characteristics Impacting Autism Surveillance.Brain sciences · 2022Article
- Development and Validation of the Assessment of Bullying Experiences Questionnaire for Neurodivergent Youth.Journal of autism and developmental disorders · 2022Article
- Challenges and unmet needs of mothers of preschool children with autism spectrum disorders in Tunisia: a qualitative study.The Pan African medical journal · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 1 institution in 1 country.
Funding
Abstract
This paper examines family experiences with the efficiency of ASD diagnosis. Children were age 8 or younger with ASD (n = 450). Outcomes were delay from first parent concern to diagnosis, shifting diagnoses, and being told child did not have ASD. Predictors were screening, travel distance, and problems finding providers. Logit models were used to examine associations. Screening was associated with reduced delay in diagnosis; problems finding providers were associated with greater delay. Screening, travel distance, and delay in diagnosis were associated with shifting diagnoses and being told child did not have ASD. Physician and parent training in communication and addressing mental health professional shortages and maldistribution may improve the diagnosis experiences of families of children with ASD.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.