ArticleBMC pediatrics2018
Patterns of paediatric end-of-life care: a chart review across different care settings in Switzerland.
Article in BMC pediatrics, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed.
- Redirection of Care for Neonates with Hypoxic-Ischemic Encephalopathy Receiving Therapeutic Hypothermia.Journal of clinical medicine · 2025Article
- Implementing Palliative care, based on family-centered care, in a highly complex neonatal unit.Jornal de pediatria · 2023Article
- Palliative Extubation in Pediatric Patients in the Intensive Care Unit and at Home: A Scoping Review.International journal of pediatrics · 2023Article
- Pediatric Palliative Care in Oncology: Basic Principles.Cancers · 2022Review
- Palliative Care in Children With Advanced Heart Disease in a Tertiary Care Environment: A Mini Review.Frontiers in cardiovascular medicine · 2022Review
- Mortality in pediatric hydrocephalus.Developmental medicine and child neurology · 2022Article
- Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol.Contemporary clinical trials communications · 2021Article
- Long-Term Follow-Up of Legacy Services Offered by Children's Hospitals in the United States.Palliative medicine reports · 2021Article
- Differing needs of mothers and fathers during their child's end-of-life care: secondary analysis of the "Paediatric end-of-life care needs" (PELICAN) study.BMC palliative care · 2020Article
- Transforming a Face-to-Face Legacy Intervention to a Web-Based Legacy Intervention for Children With Advanced Cancer.Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · 2020Article
- Epidemiology of childhood death in Australian and New Zealand intensive care units.Intensive care medicine · 2019Article
Corrections and comments
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Authors and funding
52 authors.
Funding
Abstract
backgroundPaediatric end-of-life care is challenging and requires a high level of professional expertise. It is important that healthcare teams have a thorough understanding of paediatric subspecialties and related knowledge of disease-specific aspects of paediatric end-of-life care. The aim of this study was to comprehensively describe, explore and compare current practices in paediatric end-of-life care in four distinct diagnostic groups across healthcare settings including all relevant levels of healthcare providers in Switzerland.
methodsIn this nationwide retrospective chart review study, data from paediatric patients who died in the years 2011 or 2012 due to a cardiac, neurological or oncological condition, or during the neonatal period were collected in 13 hospitals, two long-term institutions and 10 community-based healthcare service providers throughout Switzerland.
resultsNinety-three (62%) of the 149 reviewed patients died in intensive care units, 78 (84%) of them following withdrawal of life-sustaining treatment. Reliance on invasive medical interventions was prevalent, and the use of medication was high, with a median count of 12 different drugs during the last week of life. Patients experienced an average number of 6.42 symptoms. The prevalence of various types of symptoms differed significantly among the four diagnostic groups. Overall, our study patients stayed in the hospital for a median of six days during their last four weeks of life. Seventy-two patients (48%) stayed at home for at least one day and only half of those received community-based healthcare.
conclusionsThe study provides a wide-ranging overview of current end-of-life care practices in a real-life setting of different healthcare providers. The inclusion of patients with all major diagnoses leading to disease- and prematurity-related childhood deaths, as well as comparisons across the diagnostic groups, provides additional insight and understanding for healthcare professionals. The provision of specialised palliative and end-of-life care services in Switzerland, including the capacity of community healthcare services, need to be expanded to meet the specific needs of seriously ill children and their families.
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