Evidence map›Paper›PMID 29451541›Full record

ArticleResearch integrity and peer review2016

Publishing descriptions of non-public clinical datasets: proposed guidance for researchers, repositories, editors and funding organisations.

Iain Hrynaszkiewicz, Varsha Khodiyar, Andrew L Hufton, Susanna-Assunta Sansone

Abstract read
In one paragraph

Article in Research integrity and peer review, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed.

  1. Article
  2. Article
  3. Five years of Scientific Data.Scientific data · 2019
    Article
  4. Review
  5. Article
  6. Article
  7. Article
  8. Research integrity and peer review · 2018
    Article
  9. Open data and digital morphology.Proceedings. Biological sciences · 2017
    Review
  10. Review
  11. Article
  12. Article
  13. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Iain HrynaszkiewiczSpringer Nature, The Campus, Trematon Walk, Wharfdale Road, London, N1 9FN UK.
Varsha KhodiyarScientific Data, The Campus, Trematon Walk, Wharfdale Road, London, N1 9FN UK.
Andrew L HuftonScientific Data, The Campus, Trematon Walk, Wharfdale Road, London, N1 9FN UK.
Susanna-Assunta SansoneScientific Data, The Campus, Trematon Walk, Wharfdale Road, London, N1 9FN UK.

Funding

Wellcome Trust
6 · The paper itself

Abstract

Sharing of experimental clinical research data usually happens between individuals or research groups rather than via public repositories, in part due to the need to protect research participant privacy. This approach to data sharing makes it difficult to connect journal articles with their underlying datasets and is often insufficient for ensuring access to data in the long term. Voluntary data sharing services such as the Yale Open Data Access (YODA) and Clinical Study Data Request (CSDR) projects have increased accessibility to clinical datasets for secondary uses while protecting patient privacy and the legitimacy of secondary analyses but these resources are generally disconnected from journal articles-where researchers typically search for reliable information to inform future research. New scholarly journal and article types dedicated to increasing accessibility of research data have emerged in recent years and, in general, journals are developing stronger links with data repositories. There is a need for increased collaboration between journals, data repositories, researchers, funders, and voluntary data sharing services to increase the visibility and reliability of clinical research. Using the journal

Indexed as

Data JournalData RepositoryJournal ArticleOpen Access JournalScientific Data

Identifiers

PMID29451541
PMCPMC5793987

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.