ArticleSpinal cord series and cases2018
Stigma and self-management: an Interpretative Phenomenological Analysis of the impact of chronic recurrent urinary tract infections after spinal cord injury.
Article in Spinal cord series and cases, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
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Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it, 36 citations in OpenAlex.
- Clinical application of stem cell therapy in neurogenic bladder: a systematic review and meta-analysis.International urogynecology journal · 2022Pooled it
- A survey of knowledge, experiences, and quality of life impacts related to urinary tract infections among people with neurogenic bladder.The journal of spinal cord medicine · 2026Article
- Gaps in recovery priorities between individuals with spinal cord injury and healthcare professionals.npj health systems · 2026Article
- Nurse and Patient Perspectives on Self-Management and mHealth Service Requirements of Patients with Neurogenic Bladder Following Spinal Cord Injury: A Qualitative Study Based on the Integrated Theory of Health Behavior Change.Patient preference and adherence · 2026Article
- Article
- Unraveling Online Perspectives and Misinformation Surrounding Urinary Tract Infections: A Thematic Analysis of 1200 Instagram Posts.Urology research & practice · 2025Article
- Use of ChatGPT for Urinary Symptom Management Among People With Spinal Cord Injury or Disease: Qualitative Study.JMIR rehabilitation and assistive technologies · 2025Article
- Urinary tract infections and urinary bladder health experiences of persons with spinal cord injury in a Canadian province: A mixed methods study showcasing infection prevention as health inequity case.The journal of spinal cord medicine · 2025Article
- What drives psychotherapists' willingness to treat individuals with spinal cord injury? A cross-sectional study from Germany.Frontiers in public health · 2025Article
- Mixed-Methods Analysis of Provider-Documented and Patient-Reported Urinary Tract Infection Symptoms Among Veterans With Neurogenic Bladder.American journal of physical medicine & rehabilitation · 2024Article
- The Psychosocial Impact of Urinary Dysfunction.Urology research & practice · 2024Review
- "It's been a double-edged sword": An online qualitative exploration of the impact of COVID-19 on individuals with spinal cord injury in the US with comparisons to previous UK findings.The journal of spinal cord medicine · 2024Article
- The mediating role of coping in the relationship between perceived health and psychological wellbeing in recurrent urinary tract infection: the rUTI Illness Process Model.Health psychology and behavioral medicine · 2024Article
- Perceptions, experiences, and beliefs regarding urinary tract infections in patients with neurogenic bladder: A qualitative study.PloS one · 2023Article
- Qualitative Analysis of a Twitter-Disseminated Survey Reveals New Patient Perspectives on the Impact of Urinary Tract Infection.Antibiotics (Basel, Switzerland) · 2022Article
- Self-Management Embedded in Daily Activities: A Photoelicitation Focus Group Study among Persons with Spinal Cord Injury and Their Primary Caregivers in Bangladesh.Occupational therapy international · 2022Article
- Traumatic vs non-traumatic spinal cord injury: A comparison of primary rehabilitation outcomes and complications during hospitalization.The journal of spinal cord medicine · 2019Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
STUDY
designQualitative, phenomenological design.
objectivesNeurogenic bladder dysfunction and urinary tract infection (UTI) are common secondary consequences to neurological damage to the spinal cord. This study sought to establish the impact of chronic, recurrent UTIs on people with spinal cord injury (SCI).
settingCommunity sample, United Kingdom.
methodsTwelve participants with SCI, aged between 28 and 68 years, who had experienced at least three recurrent UTI events within the previous 12 months were recruited. Detailed qualitative information was obtained from semi-structured interviews, which lasted between 30 and 60 min. Interpretative Phenomenological Analysis was performed to explore the lived experience of UTIs.
resultsInterview findings identified a range of factors related to the experience of recurrent UTIs in people with SCI. These were classified into the following themes: (1) Symptom Management Precedence, (2) Stigma-Motivated Risk Management and (3) Exhaustive Exploration of Treatment Options. Participants discussed management of acute exacerbations. Distress arose from perceptions of UTIs as potentially stigmatizing and fear of relying on antibiotics. Arising from this fear, many participants sought alternative prevention and management strategies.
conclusionsThese results suggest that chronic recurrent UTIs act as major barriers to social participation, with adverse effects on quality of life of people with a neurogenic bladder after SCI. People with SCI would benefit from additional assessment of the impact of recurrent UTIs, so that healthcare professionals can address specific concerns, such as the psychosocial impact of urinary incontinence and stigmatizing views. Additional support to enhance self-management and facilitate social participation should be provided.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.