ReviewPediatrics2018
The Likely Impact of Congenital Zika Syndrome on Families: Considerations for Family Supports and Services.
Review in Pediatrics, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed, 4 syntheses or guidelines pooled it, 75 citations in OpenAlex.
- Health surveillance and development of children with congenital Zika Virus syndrome: an integrative literature review.Revista paulista de pediatria : orgao oficial da Sociedade de Pediatria de Sao Paulo · 2021Pooled it
- Feeding modifications and additional primary caregiver support for infants exposed to Zika virus or diagnosed with congenital Zika syndrome: a rapid review of the evidence.Tropical medicine & international health : TM & IH · 2020Pooled it
- What are the implications of Zika Virus for infant feeding? A synthesis of qualitative evidence concerning Congenital Zika Syndrome (CZS) and comparable conditions.PLoS neglected tropical diseases · 2020Pooled it
- Congenital Zika Syndrome-Assessing the Need for a Family Support Programme in Brazil.International journal of environmental research and public health · 2020Pooled it
- Social determinants impact both viral infections and brain development.Pediatric research · 2025Review
- All-Cause and Cause-Specific Mortality in Children With Congenital Zika Syndrome in Brazil.JAMA network open · 2025Article
- Craniofacial and dental features in children aged 3-5 years with congenital Zika syndrome.Clinical oral investigations · 2023Article
- Disease burden of congenital Zika virus syndrome in Brazil and its association with socioeconomic data.Scientific reports · 2023Article
- The impact of disability-related deprivation on employment opportunity at the neighborhood level: does family socioeconomic status matter?Frontiers in public health · 2023Article
- Assessment of the feasibility of Juntos: A support programme for families of children affected by Congenital Zika Syndrome.Wellcome open research · 2022Article
- Neurodevelopment in Children Exposed to ZikaFrontiers in genetics · 2022Review
- Knowledge of Zika Virus Transmission and Its Prevention among High-Risk Pregnant Women in Brazil.Viruses · 2021Article
- The feasibility of establishing parent support groups for children with congenital Zika syndrome and their families: a mixed-methods study.Wellcome open research · 2021Article
- Theoretical care model for children with congenital Zika virus syndrome in the family context.Revista latino-americana de enfermagem · 2021Article
- Juntos: A Support Program for Families Impacted by Congenital Zika Syndrome in Brazil.Global health, science and practice · 2020Article
- Health demands and care of children with congenital Zika syndrome and their mothers in a Brazilian state.BMC public health · 2020Article
- Clinical Outcomes of a Zika Virus Mother-Child Pair Cohort in Spain.Pathogens (Basel, Switzerland) · 2020Article
- Developmental Outcomes Among Young Children With Congenital Zika Syndrome in Brazil.JAMA network open · 2020Article
- How do mothers feel? Life with children with congenital Zika syndrome.International journal of gynaecology and obstetrics: the official organ of the International Federation of Gynaecology and Obstetrics · 2020Article
- Social Determinants Predicting the Knowledge, Attitudes, and Practices of Women Toward Zika Virus Infection.Frontiers in public health · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 2 institutions in 2 countries.
Funding
Abstract
Congenital Zika virus infection has obvious implications for infants, and considerable research has addressed the nature and consequences of congenital Zika syndrome (CZS). Children with classic CZS meet the criteria for "children with medical complexity," and ongoing research is required to understand the range of needs and optimal treatment options. Far less attention has been given to the consequences of CZS for families, which are both immediate and lifelong. Although families of children with CZS have much in common with families of other children with disabilities, at least 4 features of CZS have special family implications: (1) the severity of the impact on children with obvious abnormalities at birth, coupled with the anticipation of a lifetime of caregiving and economic burdens; (2) uncertainty about the unfolding consequences, both for obviously affected children and for exposed children with no symptoms at birth; (3) a lack of specialized professional knowledge about the course of the disease or treatment options; and (4) social isolation, a lack of social or community supports, and potential stigma. Supporting families will require a family-centered approach to services, extensive care coordination, access to evolving new information, ongoing surveillance, formal and informal supports, and individualized child and family services.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.