ArticleBMJ open2018
Proactive approaches to identifying dementia and dementia risk; a qualitative study of public attitudes and preferences.
Article in BMJ open, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 2 of them syntheses that pooled it.
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Who cites it
15 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The impact of social isolation from COVID-19-related public health measures on cognitive function and mental health among older adults: A systematic review and meta-analysis.Ageing research reviews · 2023Pooled it
- Pooled it
- Beliefs, barriers, and behaviors: Exploring dementia prevention perspectives in culturally diverse populations in The Netherlands.Journal of Alzheimer's disease : JAD · 2026Article
- Intrinsic capacity decline and intervention needs among older adults in a rural northern Chinese village: a qualitative study.BMC geriatrics · 2026Article
- Exploring the views of key stakeholders on dementia risk prediction in primary care in areas of socioeconomic deprivation: a qualitative study.The British journal of general practice : the journal of the Royal College of General Practitioners · 2026Article
- Article
- Public attitudes toward dementia risk prediction: A mixed-methods study.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Striking a balance: health behaviour changes in Chinese spouses of people with dementia to manage dementia risk: a qualitative study.BMC nursing · 2024Article
- Barriers and Facilitators to Participation in Clinical Trials Related to Familial Frontotemporal Dementia: A Qualitative Study.Molecular genetics & genomic medicine · 2024Article
- Remote Cognitive Screening Of Healthy Older Adults for Primary Care With the MyCog Mobile App: Iterative Design and Usability Evaluation.JMIR formative research · 2023Article
- Short report: A trend analysis of attitudes towards early diagnosis of dementia in Germany.PloS one · 2023Article
- Dementia risk communication. A user manual for Brain Health Services-part 3 of 6.Alzheimer's research & therapy · 2021Review
- Dementia Primary Prevention Policies and Strategies and Their Local Implementation: A Scoping Review Using England as a Case Study.Journal of Alzheimer's disease : JAD · 2019Article
- The clinical practice of risk reduction for Alzheimer's disease: A precision medicine approach.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2018Observational
- Signs in People with Intellectual Disabilities: Interviews with Managers and Staff on the Identification Process of Dementia.Healthcare (Basel, Switzerland) · 2018Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
objectivesThe aim of this study was to critically explore the views of the public about the acceptability and feasibility of proactive approaches to earlier dementia diagnosis and also identification of people at high risk of dementia.
designQualitative study using task group methodology and thematic data analysis.
settingTask groups were held either at the university (n=5) or at a carers' centre (n=1).
participantsA convenience sample of 31 of 54 participants identified by local non-statutory agencies took part in a task group. All were aged between 40 years and 80 years, 21 were women and 10men participated.
resultsDespite the use of task group methodology, participants expressed limited understandings of dementia and confusion between proactive approaches. Nevertheless, they highlighted a range of potential benefits and limitations of proactive approaches and the ethical issues raised. There was a preference to embed risk assessment within routine health checks, which focused on achieving a healthier lifestyle, rather than specifically on dementia. Participants emphasised the need to ensure informed consent prior to use of proactive approaches and to provide appropriate support. They also suggested alternative approaches that could potentially facilitate the early detection of dementia or reduce risk at a population level.
conclusionsAs international policy on dementia shifts towards a prevention agenda there is growing interest in identifying those at risk of developing dementia. This study provides useful insights into the acceptability of the use of such proactive approaches among the public. The introduction of proactive approaches to dementia identification raises complex practical and ethical issues, particularly in the context of low public understanding of dementia. The importance of better quality information about dementia (and the likelihood of developing dementia) and provision of psychological support for those undergoing risk assessment were highlighted.
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