ArticleCulture, medicine and psychiatry2018
Listening to Bedouin Mothers of Children with Autism.
Article in Culture, medicine and psychiatry, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
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Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A Conceptual Framework for Understanding the Cultural and Contextual Factors on Autism Across the Globe.Autism research : official journal of the International Society for Autism Research · 2020Pooled it
- The Lived Experience of Parents Raising a Child with Autism Spectrum Disorder: "Losing Your Way, Being on a Rollercoaster with Ups and Downs".Advances in experimental medicine and biology · 2026Article
- Factors Associated with Stigma Among Parents of Children with Autism Spectrum Disability in Vietnam.Journal of autism and developmental disorders · 2025Article
- The Effect of Family Characteristics on the Functioning of a Child with an Autistic Spectrum Disorder in Bedouin Society in Israel.Journal of autism and developmental disorders · 2025Article
- Navigating racism, stigma, and autism services: A scoping review of the lived experiences of racially and ethnically minoritized families.PLOS mental health · 2025Article
- Social Inhibition and Depressive Symptoms among Couples with Children with Autism Spectrum Disorder: The Mediating Role of Perceived Family Support.Medicina (Kaunas, Lithuania) · 2024Article
- 'We've come a very, very, long way' Overcoming stigma of autism: An interpretative phenomenological analysis within the UK Jewish community.Autism : the international journal of research and practice · 2022Article
- Educational equity amidst COVID-19: Exploring the online learning challenges of Bedouin and Jewish Female Preservice Teachers in Israel.Teaching and teacher education · 2022Article
- An Explorative Study of Affiliate Stigma, Resilience, and Quality of Life Among Parents of Children with Autism Spectrum Disorder (ASD).Journal of multidisciplinary healthcare · 2022Article
- Experiencing loneliness in parenthood: a scoping review.Perspectives in public health · 2021Article
- Perceptions and experiences of stigma among parents of children with developmental disorders in Ethiopia: A qualitative study.Social science & medicine (1982) · 2020Article
- Global Mental Health and Idioms of Distress: The Paradox of Culture-Sensitive Pathologization of Distress in Cambodia.Culture, medicine and psychiatry · 2019Article
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
This article examines how Bedouin mothers in Israel describe, perceive, and interpret their experiences raising a child with autism. Data were collected using semi-structured ethnographic interviews with 18 Bedouin mothers of children with autism, aged 6-16, living in recognized and unrecognized settlements in the Negev. Analysis of the study findings shows how the subaltern status of Bedouin women, which includes their husbands' constant threats of divorce or taking a second wife, makes it difficult for them to be mobile and interact in the public sphere without the presence of a man and creates an experience unique to these mothers, which we call "Exclusion within Exclusion". The Bedouin mothers report not only stigmatization, a lack of social support and loneliness but also structural-cultural characteristics that prevent them from obtaining information and participating in decision-making about the child with autism and that restrict their agency in dealing with and coping with their child's autism. In light of this situation, the discussion highlights the unique connection between local cultural scripts and the phenomenology of autism.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.