ArticleHealth expectations : an international journal of public participation in health care and health policy2018
Untimely illness: When diagnosis does not match age-related expectations.
Article in Health expectations : an international journal of public participation in health care and health policy, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
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Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A systematic review of the social functioning of youth with JIA: Barriers, stigma, and resources.Journal of pediatric psychology · 2026Pooled it
- Leaky Bodies and Everyday Disclosure and Exposure in the Neurodegenerative Illness Stories of Younger People With Parkinson's Disease.Sociology of health & illness · 2026Article
- Illness Experiences of Young Women With Rheumatoid Arthritis in South Korea.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Adolescents' and Young Adults' Adherence to Medication During the Transition to Adult Healthcare: A Developmentally Appropriate Framework for Optimising Adherence-Promoting Interventions.Paediatric drugs · 2026Review
- Ableism, ageism, and other biases in healthcare: The impact on young adult patients.Health care transitions · 2026Article
- Predicting comorbid mental health difficulties in people with autoimmune arthritis.Rheumatology international · 2024Article
- Negotiation of collective and individual candidacy for long Covid healthcare in the early phases of the Covid-19 pandemic: Validated, diverted and rejected candidacy.SSM. Qualitative research in health · 2023Article
- Understanding practitioner perspectives of youth healthcare using thematic and lexical analyses.Health expectations : an international journal of public participation in health care and health policy · 2019Article
- The impact of living with long-term conditions in young adulthood on mental health and identity: What can help?Health expectations : an international journal of public participation in health care and health policy · 2019Article
- Untimely illness: When diagnosis does not match age-related expectations.Health expectations : an international journal of public participation in health care and health policy · 2018Article
- Impact of systemic juvenile idiopathic arthritis/Still's disease on adolescents as evidenced through social media posts.Open access rheumatology : research and reviews · 2018Article
- Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
backgroundWe explore the concept of "untimely diagnosis," where the onset of a long-term condition occurs at a life stage which does not conform to traditional expectations, focusing on two conditions (asthma and arthritis) typically associated with a particular life stage (childhood and older adulthood, respectively). Previous literature has focused on the meaning of chronic illness in terms of life history, and the biographical lens has been used in various ways to make sense of the experience. Less attention has been paid to the condition onset when it seems dissonant with chronological age.
methodsSecondary analysis of two qualitative data sets (total 58 interviews) exploring the experiences of people with adult-onset asthma and young people diagnosed with arthritis. Data from the original interview transcripts relating to diagnosis and symptom recognition were re-analysed using a "candidacy" framework to examine how age and diagnosis intersect.
resultsPeople did not always assert their candidacy for either condition because of pre-conceived expectations around age. Similarly, health professionals sometimes failed to recognize patients' candidacy, instead pursuing "age-plausible" possibilities. In some cases, participants were proactive in suggesting a diagnosis to the health professional where diagnosis was delayed.
conclusionThe diagnosis of adult-onset asthma, and arthritis in young people, may be regarded as "untimely." We suggest that being diagnosed with what is perceived to be a "childhood" condition in adulthood, or "an older person's" condition in childhood, may be viewed as a "biographical paradox" and an "untimely breach" to the expected order.
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