ArticleHealth expectations : an international journal of public participation in health care and health policy2018
Preparing researchers for patient and public involvement in scientific research: Development of a hands-on learning approach through action research.
Article in Health expectations : an international journal of public participation in health care and health policy, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers.
What it found
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The trial behind it
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Who cites it
39 citing papers in PubMed.
- Building the future of patient-centred research: an EULAR PARE community of practice advancing patient research partner involvement in rheumatology.EULAR rheumatology open · 2026Article
- Exploring staff and students' understanding and experience of Public and Patient Involvement (PPI) in an Irish University.Research involvement and engagement · 2026Article
- Supporting researchers to involve patient partners in health service research: developing and assessing the feasibility and acceptability of a co-produced training programme for researchers.Research involvement and engagement · 2026Article
- Patient and public involvement in pulmonary embolism research: insights from the development of a pulmonary embolism follow-up care model.Research involvement and engagement · 2026Article
- Evaluation Tools for Patient and Public Involvement (PPI) in Health Research: A Scoping Review.The patient · 2026Article
- Development of BreeZe: a self-management support intervention for burn survivors informed by evidence, theory, and stakeholder co-creation.BMC health services research · 2025Article
- From theory to practice in training health researchers in patient and public involvement: a scoping review protocol.Systematic reviews · 2025Article
- Development of a practical guide for patient participation in value-based healthcare: an action research study.BMJ open · 2025Article
- Development of a Web-Based Intervention to Support Primary Health Care Professionals in Digital Health Measurement: User-Centered Participatory Approach.JMIR formative research · 2025Article
- Experiences, impact, and enablers of involving young people and family caregivers in developing reporting guidelines for paediatric randomised trials: a case study.Research involvement and engagement · 2025Article
- How can patients shape digital medicine? A rapid review of patient and public involvement and engagement in the development of digital health technologies for neurological conditions.Expert review of pharmacoeconomics & outcomes research · 2025Review
- Implementation of cross-sectoral rehabilitation in the Nordic countries: a scoping review.Frontiers in health services · 2025Review
- Between willingness and practice: a nationwide survey of 1,334 German patient organization members on user involvement in digital service development.Frontiers in digital health · 2025Article
- Training and peer-group coaching for pairs of researchers and patient representatives to support continuous two-way learning.Research involvement and engagement · 2024Article
- EULAR recommendations for the involvement of patient research partners in rheumatology research: 2023 update.Annals of the rheumatic diseases · 2024Article
- A rapid review of guidelines on the involvement of adolescents in health research.Health expectations : an international journal of public participation in health care and health policy · 2024Review
- Rationale and development of an e-health application to deliver patient-centered care during treatment for recently diagnosed multiple myeloma patients: pilot study of the MM E-coach.Pilot and feasibility studies · 2023Article
- Patient engagement in a national research network: barriers, facilitators, and impacts.Research involvement and engagement · 2023Article
- Patient involvement in basic rheumatology research at Nijmegen: a three year's responsive evaluation of added value, pitfalls and conditions for success.BMC rheumatology · 2022Article
- Capturing learning from public involvement with people experiencing homelessness to help shape new physiotherapy research: Utilizing a reflective model with an under-served, vulnerable population.Health expectations : an international journal of public participation in health care and health policy · 2022Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAcquiring the theoretical and practical knowhow of conducting patient and public involvement (PPI) in research is not part of the traditional curriculum of researchers. Zuyd University of Applied Sciences and Huis voor de Zorg, a regional umbrella patient organization, therefore started a 1.5-year coaching programme.
objectiveTo establish a community of practice by developing a PPI coaching programme for senior and junior health services researchers of Zuyd University. The context consisted of research projects conducted by the participants.
methodsA participatory action research methodology. Data were collected from reports of thematic group meetings and individual sessions with participants, field notes and regular reflection meetings with the project team. Data were analysed by reflexive deliberation.
findingsThe programme comprised a kick-off meeting (52 attendees), followed by 7 group meetings with 11 junior and 9 senior researchers. The project team constructed a serious game based on the concept of the participation ladder. Questions and concerns differed for junior and senior researchers, and separate tailored meetings were organized for both groups. Between group meetings, participants received individual assignments. Group meetings were accompanied by individual coaching sessions to provide tailor-made feedback. The programme concluded with a combined meeting with all stakeholders.
conclusionBuilding a community of PPI practice through action research facilitates the development of a coaching programme that fosters social learning, empowerment and the development of a shared identity concerning PPI. The role and responsibilities of senior researchers should be distinguished from those of junior researchers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.