Evidence map›Paper›PMID 29397479›Full record

ArticleJournal of genetic counseling2018

Identifying and Addressing Genetic Counseling Challenges among Indigenous People of Oaxaca-One Center's Experience with Two Immigrant Farmworker Families in the Central Valley of California.

Joseph J Shen, Jason Carmichael, Leoncio Vásquez Santos

Abstract readCase Reports
In one paragraph

Article in Journal of genetic counseling, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Joseph J ShenDivision of Genetics, Department of Pediatrics, University of California, San Francisco - Fresno, 290 N. Wayte Lane, Fresno, CA, 93701, USA. jshen@fresno.ucsf.edu.ORCID 0000-0002-5604-7639
Jason CarmichaelMedical Genetics and Metabolism, Valley Children's Hospital, Madera, CA, USA.
Leoncio Vásquez SantosBinational Center for the Development of Oaxacan Indigenous Communities, Fresno, CA, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

An important aspect of genetic counseling is the recognition of and adaptation to the socio-cultural uniqueness of the different populations that a genetics clinic serves. The Central Valley of California is home to a large population from Mexico, with a significant proportion of indigenous ancestry originating from the state of Oaxaca. We report on our experience with two families of this community-one extended family with an early lethal inborn error of metabolism and the other with a chronic disfiguring form of ichthyosis. We identified multiple important factors that needed to be considered, including the matching of language dialects, adaptation to different social interaction conventions, acknowledgement of traditional medicine beliefs, and effective transmission of genetic terms and concepts, all of which should be incorporated into the interactions with these families when aiming to provide comprehensive genetic counseling.

Indexed as

Emigrants and ImmigrantsFarmersGenetic CounselingCaliforniaFemaleHumansMexicoYoung AdultGenetic counselingImmigrant populationIndigenous ancestryIndigenous communityIndigenous languagesMixtecosMixtec peopleMulticultural genetic counselingOaxaca, MexicoTraditional medicine beliefsUnderserved population

Identifiers

PMID29397479
PMCPMC6061092

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.