Evidence map›Paper›PMID 29380715›Full record

ArticlePalliative & supportive care2018

The need to support caregivers during pediatric bone marrow transplantation (BMT): A case report.

Christina Mangurian, Wendy Packman, Nicholas S Riano, Julia Kearney

Abstract readCase Reports
In one paragraph

Article in Palliative & supportive care, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
  2. Article
  3. JCO oncology practice · 2023
    Article
  4. Article
  5. Article
  6. Caregiver availability and patient access to hematopoietic cell transplantation: social worker perspectives inform practice.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019
    Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Christina MangurianUniversity of California,San Francisco, San Francisco,Calfornia.
Wendy PackmanPalo Alto University,Palo Alto,California.
Nicholas S RianoUniversity of California,San Francisco, San Francisco,Calfornia.
Julia KearneyMemorial Sloan Kettering Cancer Center,New York, New York.

Funding

X-RAY CRYSTALLOGRAPHYP30CA008748 · NCI · SLOAN-KETTERING INSTITUTE FOR CANCER RES · PI Nicholas D Socci · 1985 to 2026
$347.4M
Improving Metabolic Screening in Diverse Severely Mentally Ill PopulationsK23MH093689 · NIMH · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI MANGURIAN, CHRISTINA · 2012 to 2016
$888k
NCI NIH HHS P30 CA008748NIMH NIH HHS K23 MH093689
6 · The paper itself

Abstract

ABSTRACTObjective:Pediatric bone marrow transplants represent a medically stressful, potentially traumatic experience for children and caregivers, and psychological support for parental caregivers is paramount to their long-term well-being. However, many medical centers do not have protocols in place to sustain caregiver well-being during these distressing experiences.

methodWe report on a case of a 10-month-old infant with Wiskott Aldrich Syndrome who was hospitalized for bone marrow transplantation.

resultWe describe the significant burden that fell upon caregivers during and after a bone marrow transplantation. SIGNIFICANCE OF

resultsThis case helped guide our suggestions to improve care for caregivers. Several logistical hurdles could be overcome to alleviate some of these burdens. We suggest that a child psychologist or psychiatrist should be on patient care teams and be attentive to parental stress, impairments, or impediments to self-care, and signs of emergency of mental illness in this setting of medical trauma. Additionally, promotion of sleep hygiene and linkage to support systems can maximize resiliency. Finally, we believe that hospital administrators should partner with clinicians to facilitate routine support during highly stressful transitions of care.

Indexed as

Bone Marrow TransplantationCaregiversCost of IllnessFamilyHumansInfantMalePediatricsPsychosocial Support SystemsSurveys and QuestionnairesWiskott-Aldrich SyndromeBone marrow transplantationCaregiversFamilyPsychosocial support

Identifiers

PMID29380715
PMCPMC6191174

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.