ArticleChild: care, health and development2018
Are the health needs of young people with cerebral palsy met during transition from child to adult health care?
Article in Child: care, health and development, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it, 53 citations in OpenAlex.
- Gaps in transitional care to adulthood for patients with cerebral palsy: a systematic review.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2023Pooled it
- Transition and Life-Long Care for Adults With Cerebral Palsy: A Patient Group 'Too Hard to Impact!' Are We Still Sending Young People 'Off a Cliff'?Journal of evaluation in clinical practice · 2025Article
- A Cross-Sectional Study of Disparities in Healthcare Transition in Cerebral Palsy.Journal of clinical medicine · 2024Article
- Transitions Pop-ups: Co-designing client-centred support for disabled youth transitioning to adult life.Frontiers in rehabilitation sciences · 2024Article
- Transfer of musculoskeletal care from paediatric to adult services for patients with cerebral palsy and chronic neuromuscular conditions: Identifying the unmet need.Health care transitions · 2024Article
- Unmet environmental needs and unmet healthcare needs in a population of young adults with cerebral palsy: what the SPARCLE study tells us.Frontiers in rehabilitation sciences · 2024Article
- Adults with Cerebral Palsy: Navigating the Complexities of Aging.Brain sciences · 2023Review
- Transition to adult services experienced by young people with cerebral palsy: A cross-sectional study.Developmental medicine and child neurology · 2023Article
- Use of health services and unmet needs among adults with cerebral palsy in Ireland.Developmental medicine and child neurology · 2022Article
- Unmet Health Needs among Young Adults with Cerebral Palsy in Ireland: A Cross-Sectional Study.Journal of clinical medicine · 2022Article
- Transitions Theatre: An Arts-Informed Interprofessional Education Workshop.MedEdPORTAL : the journal of teaching and learning resources · 2022Article
- Patterns of Health Service Use Among Young People With Cerebral Palsy in England.Frontiers in neurology · 2021Article
- Bridging Pediatric and Adult Rehabilitation Services for Young Adults With Childhood-Onset Disabilities: Evaluation of the LIFEspan Model of Transitional Care.Frontiers in pediatrics · 2021Article
- Transition from child to adult health services for young people with cerebral palsy in Ireland: a mixed-methods study protocol.BMJ open · 2020Article
- Transition from child-centred to adult-oriented healthcare systems for young people with neurodisability: a scoping review protocol.HRB open research · 2020Article
- Facilitating transition of young people with long-term health conditions from children's to adults' healthcare services - implications of a 5-year research programme.Clinical medicine (London, England) · 2020Article
- A longitudinal, observational study of the features of transitional healthcare associated with better outcomes for young people with long-term conditions.BMC medicine · 2018Observational
- Are the health needs of young people with cerebral palsy met during transition from child to adult health care?Child: care, health and development · 2018Article
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
Abstract
backgroundThe transition from child to adult health care is a particular challenge for young people with cerebral palsy, who have a range of needs. The measurement of reported needs, and in particular unmet needs, is one means to assess the effectiveness of services.
methodsWe recruited 106 young people with cerebral palsy, before transfer from child services, along with their parents to a 3-year longitudinal study. Reported needs were measured with an 11-item questionnaire covering speech, mobility, positioning, equipment, pain, epilepsy, weight, control of movement, bone or joint problems, curvature of the back, and eyesight. Categorical principal component analysis was used to create factor scores for bivariate and regression analyses.
resultsA high level of reported needs was identified particularly for control of movement, mobility, and equipment, but these areas were generally being addressed by services. The highest areas of unmet needs were for management of pain, bone or joint problems, and speech. Analysis of unmet needs yielded two factor scores, daily living health care and medical care. Unmet needs in daily living health care were related to severity of motor impairment and to attending nonspecialist education. Unmet needs tended to increase over time but were not significantly (p > .05) related to whether the young person had transferred from child services.
conclusionsReporting of unmet needs can indicate where service development is required, and we have shown that the approach to measurement can be improved. As the number of unmet health needs at the start of transition is considerable, unmet health needs after transition cannot all be attributed to poor transitional health care. The range and continuation of needs of young people with cerebral palsy argue for close liaison between adult services and child services and creation of models of practice to improve coordination.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.